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  • Our work
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  • Improving your healthcare

Improving your healthcare

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Having access to the right care at the right time is important for people living with Crohn’s or Colitis. This is because the conditions can be unpredictable and get worse if not treated quickly. They are also complex affecting many parts of the body and mind.

Find out about all our work to ensure that people with Crohn’s and Colitis have access to safe, consistent, high-quality, personalised care, whatever their age and wherever they live in the UK and how you can get involved.

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We are working towards making IBD Standards a reality. The IBD Standards set out what high-quality care should look like, from first symptoms to diagnosis, treatment and ongoing care.  These underpin our work to improve healthcare for everyone living with Crohn’s or Colitis. 

IBD UK

The IBD Standards were developed by IBD UK, an alliance of professional associations, royal colleges, and patient organisations. We chair IBD UK and ensure that the needs of people living with Crohn’s and Colitis are at the centre of the work of this coalition. 

The IBD UK report Crohn’s and Colitis Care in the UK: The Hidden Cost and a Vision for Change looked at the experiences of over 10,000 people with Crohn’s and Colitis and 72% of IBD services across the UK and revealed that care needs to be improved.  

Find out more
Find out more

How we are working to improve your care

Spotlight on Homecare medicines services

Homecare medicine delivery services help you personalise your care and take control of your treatment plan. However, there are deep, systemic and long-standing failures in these services, which put your care at risk and adds pressure on an already stretched IBD workforce.

Find out more about the campaign here
Medical Reducing the wait for diagnosis
Help Making healthcare personal to you
Treatment Accessing the right support and treatments at the right time
Healthcare professionals Ensuring access to a full range of specialists who work together
Campaigning Policy and influencing
Working with Healthcare Professionals

Get involved

We believe it’s fundamental that people with Crohn’s and Colitis are involved in the decisions about how healthcare is delivered - no project or service will be as good as it could be without the input of people affected by the conditions.

Involving people with Crohn’s and Colitis in improving healthcare

Become a Campaigner

None of our award-winning campaigns would be possible without our amazing community of dedicated campaigners. Your powerful voice really does matter. 

Get involved in campaigning
Get involved in campaigning

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Crohn's and Colitis

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We know it can be difficult to live with, or support someone living with these conditions. But you’re not alone. We provide up-to-date, evidence-based information and can support you to live well with Crohn’s or Colitis.

Our helpline team can help by:

  • Providing information about Crohn’s and Colitis.

  • Listening and talking through your situation.

  • Helping you to find support from others in the Crohn’s and Colitis community.

  • Providing details of other specialist organisations.

Please be aware we’re not medically or legally trained. We cannot provide detailed financial or benefits advice or specialist emotional support.

Please contact us via telephone, email or LiveChat - 9am to 5pm, Monday to Friday (except English bank holidays).

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If you need specific medical advice about your condition, your GP or IBD team will be best placed to help.

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