Crohn’s and Colitis are complex and fluctuating conditions affecting many parts of the body and mind. The physical and emotional symptoms can vary hugely from one person to another and over time. That’s why care needs to be delivered by a team of healthcare professionals, including IBD nurse specialists, gastroenterologists, colorectal surgeons, pharmacists, dietitians, and psychologists.
Good IBD care should involve lots of different healthcare professionals, including your GP and specialists for skin, joints, and eyes, it needs to be well-coordinated. This is especially important when young people move from children’s services to adult services – called “transition”
But we know from the IBD patient survey that many teams do not have enough specialists and care is not as well-coordinated as it needs to be.
Our IBD nurse specialist programme funds the continuing education of IBD nurse specialists and we will continue to campaign for everyone with Crohn’s or Colitis to have access to one, as part of the full specialist team, whatever their age and wherever they live in the UK.
We believe it’s fundamental that people with Crohn’s and Colitis are involved in the decisions about how healthcare is delivered - no project or service will be as good as it could be without the input and experiences of people affected by the conditions.
None of our award-winning campaigns would be possible without our amazing community of dedicated campaigners. Your powerful voice really does matter.
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We know it can be difficult to live with, or support someone living with these conditions. But you’re not alone. We provide up-to-date, evidence-based information and can support you to live well with Crohn’s or Colitis.
Our helpline team can help by:
Providing information about Crohn’s and Colitis.
Listening and talking through your situation.
Helping you to find support from others in the Crohn’s and Colitis community.
Signposting you to specialist organisations.
Please be aware we’re not medically or legally trained. We cannot provide detailed financial or benefits advice or specialist emotional support.
Please contact us via telephone, email or LiveChat - 9am to 5pm, Monday to Friday (except English bank holidays).
If you need specific medical advice about your condition, your GP or IBD team will be best placed to help.
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