Helpline service

Crohn's & Colitis UK helpline

We know it can be difficult to live with, or support someone living with Crohn’s or Colitis. But you’re not alone. We can give you the right information and support at the right time for you.

We provide up-to-date, evidence-based information and can support you to live well with Crohn’s or Colitis.

We’re here for everyone.

Crohn's & Colitis UK helpline
Last reviewed April 2022

It's natural to feel unsure about contacting a helpline for the first time. There's no need to feel embarrassed talking to us about your poo, toilet habits or other symptoms. It's good to talk and we have heard it all before


Anna, our helpline officer



How we can help

Our helpline team can provide information on a range of subjects including:

We can help you find support from others from the Crohn's and Colitis community.

We also signpost people to sources of expert advice on disability benefits and options for specialist emotional support.

If you need specific medical advice about your condition, your GP or IBD team will be best placed to help.


How to contact us

We're here for you via telephone, email or LiveChat.

Our lines are open 9am to 5pm, Monday to Friday (except English bank holidays).

You can email us anytime and we will aim to respond to your email within three working days.

Your data privacy and protection are important. All our calls are recorded in-line with General Data Protection Regulation (GDPR). You can read our data privacy policy here.

LiveChat

 

Live chat

If no one answers when LiveChat is shown as 'Open', please try again. We’re busy answering all our queries as quickly as possible and we thank you for your patience. 


Who will answer my call?

Our team consists of trained and experienced helpline officers. We can provide you with up-to-date, evidence-based information.

We speak to many people with Crohn’s and Colitis so understand your worries. 


Feedback from people who have used the service

The fact that you are there to listen with no judgement when someone is at rock bottom is very encouraging. Keep up the good work. I am grateful for finding you online.


Service user

I felt quite fed up before contacting the LiveChat but the helpline officer was great at explaining things and providing links for me to have a look at. It is nice to talk to someone who understands rather than family/friends sometimes.


Service user

Kind and approachable as I find it quite hard to ask the GP or consultant questions whereas it felt easier to ask the helpline team.


Service user


Other forms of support

What to do if you’re feeling unwell

We know how you feel can change at times and you might be having a flare-up of symptoms. It’s natural to ask if this is normal and what you should do. 

We're not qualified to give medical advice. If you’re having trouble managing your symptoms, then your IBD team or GP will be best placed to help you. 

Many hospital services have advice lines, usually supported by IBD Nurse Specialists. Our interactive map of services can help you search for your hospital including contact details for some of the UK IBD nurse advice lines.  

If you feel your symptoms are becoming an urgent medical concern, or you need urgent medical advice, you can call NHS 111. If you need emergency care call 999 or go to your nearest A&E.  

If you need help and understanding about your Crohn's or Colitis

If it’s not possible to contact us today, you may be able to find an answer to your question in our large range of information pages. Our information can be viewed online or you can download items to read later. 

We also provide topical information to support you, such as coronavirus, and our latest news items and stories. 

Our chatbot Gutsy can help you navigate these information pages too. You can find Gutsy via the button at the bottom-right of your screen.

Feeling anxious or worried?

Coping with a long-term condition can have a big impact on not only your physical symptoms, but your mental wellbeing, too. These feelings are completely normal, and many people with Crohn’s or Colitis experience them from time to time. 

Samaritans 

If you think that talking to someone about how you’re feeling would be helpful, you can call the Samaritans on 116 123. They are there for you whatever you’re going through and are available 24 hours a day, 7 days a week. You can also email them jo@samaritans.org   

Mind

Mind provides advice and support to empower anyone experiencing a mental health problem. They have lots of resources on their website. Local Minds provide mental health services in local communities across England and Wales. You can also call their helpline 0300 123 3393, 9am to 6pm, Monday to Friday (except for bank holidays) or email info@mind.org.uk  

Shout

If you want support via text, contact SHOUT by texting 85258. This is a free 24/7 confidential text service. 


Disclaimer

Your data privacy and protection are important. Calls may be recorded in-line with General Data Protection Regulation (GDPR). Read our privacy and confidentiality policies. 



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Helpline service

Helpline
Service

We know it can be difficult to live with, or support someone living with these conditions. But you’re not alone. We provide up-to-date, evidence-based information and can support you to live well with Crohn’s or Colitis.

Our helpline team can provide information on a range of subjects including:

  • Managing Symptoms
  • Disability benefits
  • Medication
  • Diet
  • Test and diagnosis
  • Wellbeing
  • Employment
  • Help to find support from others living with the condition

Please contact us via telephone, email or LiveChat - 9am to 5pm, Monday to Friday (except English bank holidays).

Live chat

If you need specific medical advice about your condition, your GP or IBD team will be best placed to help.