Having access to the right care at the right time is incredibly important for people living with Crohn’s or Colitis. We want everyone with Crohn’s and Colitis to have access to safe, consistent, high-quality, personalised care, whatever their age and wherever they live in the UK. Find out how we work with healthcare professionals to make this happen.
There are currently large differences in the standard of care across the UK and because of this, IBD UK, a partnership of 17 patient and professional organisations, led by Crohn’s & Colitis UK, have come together with people living with Crohn’s and Colitis. Since publishing the IBD Standards, and their report Crohn’s and Colitis care in the UK: the hidden cost and a vision for change, the IBD UK alliance are working to support improvements to healthcare across the UK.
Crohn’s & Colitis UK work closely with many members of IBD UK, including professional bodies such as the British Society for Gastroenterology and the Royal College of Nursing. We are also working in partnerships on many projects across the UK, for example, AWARE-IBD, and piloting a supported self-management programme in Scotland.
Our IBD nurse specialist programme funds the continuing education of IBD nurse specialists and we will continue to campaign for everyone with Crohn’s or Colitis to have access to one, as part of the full specialist team, whatever their age and wherever they live in the UK.
Most specialist hospital services run an IBD advice line for queries and concerns, which is usually supported by an IBD nurse specialist. We provide advice line training to help IBD nurse specialists to run these effectively.
Find the details of your local IBD advice line through our map
The RCGP and Crohn's & Colitis UK IBD Spotlight project ran between 2017 and 2020. The project produced a resource-rich Inflammatory Bowel Disease (IBD) toolkit, featuring podcasts, presentations, and tools to help GPs better support their patients with IBD.
We want people living with Crohn’s or Colitis and healthcare professionals to shape health services, together. That is why we’ve created these resources for healthcare professionals, to make it easy to involve people, and most importantly to work together.
Our community keeps us in touch with healthcare professionals. It allows us all to share a range of updates, opportunities to get involved, industry updates, the latest research and best practice. Find out more, including how to join the community if you are a healthcare professional here.
We are extremely grateful for all the other ways healthcare professionals support our work, including being a part of boards that review our publications or agree decisions on our research funding to supporting us to deliver education through Facebook Live talks, and from being a media spokespeople or sharing their story to fundraising for us – their time given to support us really does make a difference.
None of our award-winning campaigns would be possible without our amazing community of dedicated campaigners. Your powerful voice really does matter.
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We know it can be difficult to live with, or support someone living with these conditions. But you’re not alone. We provide up-to-date, evidence-based information and can support you to live well with Crohn’s or Colitis.
Our helpline team can help by:
Providing information about Crohn’s and Colitis.
Listening and talking through your situation.
Helping you to find support from others in the Crohn’s and Colitis community.
Signposting you to specialist organisations.
Please be aware we’re not medically or legally trained. We cannot provide detailed financial or benefits advice or specialist emotional support.
Please contact us via telephone, email or LiveChat - 9am to 5pm, Monday to Friday (except English bank holidays).
If you need specific medical advice about your condition, your GP or IBD team will be best placed to help.
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