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Accessing the right support and treatments at the right time

Blood Being Drawn Medicine

Crohn’s and Colitis are fluctuating conditions, which means they need to be monitored closely, and specialist advice and treatment should be available quickly when needed. Understanding when you are having a flare-up of your condition and what you can do to manage this is very important. 

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What are we doing to change this?

Advice Lines

Most specialist hospital services run an IBD advice line for queries and concerns, which is usually supported by an IBD nurse specialist. We provide advice line training to help IBD nurse specialists run these effectively.  

Find the details of your local IBD advice line through our map 

Flare card

We have co-designed a flare card, as part of a project in Scotland, and flare pathways to streamline access from GPs to specialists. 

Access to treatments 

Medicines are a vital part of managing and treating the symptoms of Crohn’s and Colitis. Therefore, being able to access the widest and most innovative range of evidence-based drug treatments and new technologies is important 

We are working to remove barriers that prevent people with Crohn’s and Colitis from accessing the most effective treatments needed to keep well with Crohn’s or Colitis.   

Find out more about our work to increase access to drugs and treatments. 

We also work with the Association of Coloproctology of Great Britain and Ireland (ACPGBI) as part of IBD UK to ensure that surgery for Crohn’s and Colitis is prioritised appropriately, based on clinical need.  

Read the ACPGBI guidance on management of patients with IBD requiring surgical intervention during the COVID-19 pandemic. 

We are also members of the advisory group for the National Confidential Enquiry into Patient Outcome and Death (NCEPOD) study into surgery for Crohn’s Disease. 

Get Involved 

We believe it’s fundamental that people with Crohn’s and Colitis are involved in the decisions about how healthcare is delivered - no project or service will be as good as it could be without the input of people affected by the conditions. 

Find out more about how you can work with us on some of our projects or get involved with your local IBD team here

Become a Campaigner

None of our award-winning campaigns would be possible without our amazing community of dedicated campaigners. Your powerful voice really does matter. 

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We know it can be difficult to live with, or support someone living with these conditions. But you’re not alone. We provide up-to-date, evidence-based information and can support you to live well with Crohn’s or Colitis.

Our helpline team can help by:

  • Providing information about Crohn’s and Colitis.

  • Listening and talking through your situation.

  • Helping you to find support from others in the Crohn’s and Colitis community.

  • Providing details of other specialist organisations.

Please be aware we’re not medically or legally trained. We cannot provide detailed financial or benefits advice or specialist emotional support.

Please contact us via telephone, email or LiveChat - 9am to 5pm, Monday to Friday (except English bank holidays).

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If you need specific medical advice about your condition, your GP or IBD team will be best placed to help.

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