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Reducing the wait for diagnosis

Nurse and Patient

People are waiting too long for a diagnosis of Crohn’s or Colitis.  Living with debilitating symptoms without treatment has a big impact on their lives.  

Crohn’s and Colitis are not well-understood, so someone with symptoms might not realise they need to seek help.  The symptoms overlap with other conditions, making it hard for GPs to spot possible Crohn’s or Colitis. And the systems are not always in place to ensure people are seen quickly by a specialist.  

Nurse and Patient
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We are working to make the IBD Standards a reality. The IBD Standards set out what high-quality care should look like, from first symptoms to diagnosis, treatment and ongoing care.  

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How we are working to reduce the wait for diagnosis

Resources for GPs
Working with Healthcare Professionals
Getting It Right First Time and NHS Rightcare
IBD UK and the IBD Standards
Evidence & research
Campaigns

Get Involved 

We believe it’s fundamental that people with Crohn’s and Colitis are involved in the decisions about how healthcare is delivered - no project or service will be as good as it could be without the input of people affected by the conditions. 

Find out more about how you can work with us on some of our projects or get involved with your local IBD team.

Become a Campaigner

None of our award-winning campaigns would be possible without our amazing community of dedicated campaigners. Your powerful voice really does matter. 

Get involved in campaigning
Get involved in campaigning

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Crohn's and Colitis

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Helpline
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We know it can be difficult to live with, or support someone living with these conditions. But you’re not alone. We provide up-to-date, evidence-based information and can support you to live well with Crohn’s or Colitis.

Our helpline team can help by:

  • Providing information about Crohn’s and Colitis.

  • Listening and talking through your situation.

  • Helping you to find support from others in the Crohn’s and Colitis community.

  • Providing details of other specialist organisations.

Please be aware we’re not medically or legally trained. We cannot provide detailed financial or benefits advice or specialist emotional support.

Please contact us via telephone, email or LiveChat - 9am to 5pm, Monday to Friday (except English bank holidays).

If you need specific medical advice about your condition, your GP or IBD team will be best placed to help.

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