How to get a diagnosis

Last full review: December 2023

Next review date: December 2026

Doctor At Desk

Crohn’s and Colitis are lifelong conditions that cause inflammation and ulcers in the gut. The symptoms can include:

  • Diarrhoea
  • Blood in your poo
  • Unexplained weight loss
  • Extreme tummy pain
  • Tiredness

Getting a diagnosis of Crohn's or Colitis is not always easy. You may need several tests, examinations and investigations. For some people, waiting times can be long. And you may be dealing with embarrassing and distressing symptoms and the anxiety they may bring while you wait.

But you’re not alone. This information is designed to guide you through the process of getting a diagnosis. We hope our information will make things seem less overwhelming, but if you have any questions, then our helpline is here to help you.

Below you can find out about:

  • How to talk to your GP
  • Tests and investigations you might need
  • What your results might mean
  • What to do if you think you don’t have the right diagnosis
  • Next steps after you have your results

This information might use words you have not heard before. Our page on medical words can help provide an explanation.

Download this information (PDF)

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  • Key facts about how to get a diagnosis
  • Do not put off seeking help
  • Talking to your GP
  • Tips for getting a GP appointment
  • Tips on talking to your GP
  • Looking after your mental health
  • First investigations
  • Getting referred to a gastroenterology team
  • Looking at your gut (endoscopy)
  • Understanding your results
  • If you’re told you have Crohn’s or Colitis
  • If your endoscopy doesn’t find Crohn’s or Colitis
  • If you’re not certain about your diagnosis
  • Making a complaint
  • Help and support from Crohn's & Colitis UK
  • About this information

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Helpline service

Helpline
Service

We know it can be difficult to live with, or support someone living with these conditions. But you’re not alone. We provide up-to-date, evidence-based information and can support you to live well with Crohn’s or Colitis.

Our helpline team can help by:

  • Providing information about Crohn’s and Colitis.

  • Listening and talking through your situation.

  • Helping you to find support from others in the Crohn’s and Colitis community.

  • Providing details of other specialist organisations.

Please be aware we’re not medically or legally trained. We cannot provide detailed financial or benefits advice or specialist emotional support.

Please contact us via telephone, email or LiveChat - 9am to 5pm, Monday to Friday (except English bank holidays).

Live chat

If you need specific medical advice about your condition, your GP or IBD team will be best placed to help.

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