IBD Standards

The IBD Standards, published in 2019, set out what high-quality care looks like at every point of the patient journey, from pre-diagnosis, to surgery and ongoing care, as well as how  IBD services should be organised to deliver this. 

IBD Benchmarking Tool

The IBD Benchmarking Tool was designed to assess how well services are performing against the IBD Standards, highlighting excellent care and helping services to plan improvements. 

It includes a Service Self-Assessment, completed by individual IBD teams, and the IBD Patient Survey, completed by people with Crohn’s and Colitis using each service.  

The second UK-wide round of IBD UK benchmarking was launched in April 2023 and has now closed.  We'd like to thank everyone who completed the survey both from services and as patients.

IBD UK Reports

The IBD UK report Crohn’s and Colitis Care in the UK: the hidden cost and a vision for change used data from the 2019 benchmarking tool to identify four main areas for focus: 

• Adults and children are waiting too long for a diagnosis of Crohn’s or Colitis 
• The wider symptoms of Crohn’s and Colitis, such as pain, fatigue and emotional wellbeing are often not discussed 
• People are not getting specialist advice and treatment quickly enough 
• There are not enough specialists, including IBD nurse specialists, dietitians and psychologists and care is often not joined up