People with Crohn’s and Colitis should receive safe, consistent, high-quality, personalised care whatever their age and wherever they live in the UK.
There are currently large differences in standards of care across the UK and because of this, IBD UK, a partnership of 16 patient and professional organisations, led by Crohn’s & Colitis UK, have come together with people living with Crohn’s and Colitis to develop the IBD Standards.
The IBD Standards, published in 2019, set out what high-quality care looks like at every point of the patient journey, from pre-diagnosis, to surgery and ongoing care, as well as how IBD services should be organised to deliver this.
The IBD UK Benchmarking was developed to encourage IBD services to recognise what they are doing well and identify where they need to improve, based on the IBD Standards 2019.
It includes the Service Survey, completed by individual IBD services, and the IBD Patient Survey, completed by people with IBD using each service.
The latest round of IBD UK Benchmarking took place in 2023, with 64% of all IBD services taking part across the UK, and 17,654 people completing the Patient Survey. Local Service Reports have now been produced, along with a national 2024 IBD UK Report looking at the overall state of IBD care in the UK.
We are very happy to announce the official release of the 2024 IBD UK Report. Based on data from the 2023 IBD UK Benchmarking surveys, the IBD UK Report provides an outlook on the state of IBD care across the UK.
You can read the report in full by following this link: 2024 IBD UK Report: The State of IBD Care in the UK
The report looks at key findings from the Benchmarking surveys on a national level, as well as providinga number of recommendations to help ensure stands of IBD care improve. These recommendations, and the full report, will be shared with key decision and policy makers in healthcare across the UK. This includes hospital CEOs and MPs.
We have also produced individual reports for each of the devolved UK nations, looking at IBD care in Scotland, Wales, and Northern Ireland respectively.
You can access the 2024 Devolved Nation Reports here: 2024 Devolved Nation Reports
Finally, if you wish to look at the Benchmarking data for a specific IBD service, you can use our Local Service Reports Map here: Local Service Reports Map
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We know it can be difficult to live with, or support someone living with these conditions. But you’re not alone. We provide up-to-date, evidence-based information and can support you to live well with Crohn’s or Colitis.
Our helpline team can help by:
Providing information about Crohn’s and Colitis.
Listening and talking through your situation.
Helping you to find support from others in the Crohn’s and Colitis community.
Providing details of other specialist organisations.
Please be aware we’re not medically or legally trained. We cannot provide detailed financial or benefits advice or specialist emotional support.
Please contact us via telephone, email or LiveChat - 9am to 5pm, Monday to Friday (except English bank holidays).
If you need specific medical advice about your condition, your GP or IBD team will be best placed to help.
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