Become a Campaigner
None of our award-winning campaigns would be possible without our amazing community of dedicated campaigners. Your powerful voice really does matter.
People with Crohn’s and Colitis should receive safe, consistent, high-quality, personalised care whatever their age and wherever they live in the UK.
There are currently large differences in standards of care across the UK and because of this, IBD UK, a partnership of 17 patient and professional organisations, led by Crohn’s & Colitis UK, have come together with people living with Crohn’s and Colitis to develop the IBD Standards.
The IBD Standards, published in 2019, set out what high-quality care looks like at every point of the patient journey, from pre-diagnosis, to surgery and ongoing care, as well as how IBD services should be organised to deliver this.
The IBD Benchmarking Tool was designed to assess how well services are performing against the IBD Standards, highlighting excellent care and helping services to plan improvements.
It includes a Service Self-Assessment, completed by individual IBD teams, and the IBD Patient Survey, completed by people with Crohn’s and Colitis using each service.
The next round of IBD UK benchmarking is planned for spring 2023.
The IBD UK report Crohn’s and Colitis Care in the UK: the hidden cost and a vision for change used data from the benchmarking tool to identify four main areas for focus:
None of our award-winning campaigns would be possible without our amazing community of dedicated campaigners. Your powerful voice really does matter.
We know it can be difficult to live with, or support someone living with these conditions. But you’re not alone. We provide up-to-date, evidence-based information and can support you to live well with Crohn’s or Colitis.
Our helpline team can provide information on a range of subjects including:
Please contact us via telephone, email or LiveChat - 9am to 5pm, Monday to Friday (except English bank holidays).
If you need specific medical advice about your condition, your GP or IBD team will be best placed to help.