Get involved in improving Crohn’s and Colitis care
We believe Crohn’s and Colitis care can only improve when people with the conditions are listened to and involved. So, we want people living with Crohn’s and Colitis and healthcare professionals to shape healthcare, together.
This page explains the ways you can influence and get involved in improving healthcare, and gives some practical tools and resources to support you. These are:
An open day is a free event that gives people using a service, including parents, carers and newly diagnosed patients, the chance to meet their healthcare team. You can also meet other people with Crohn’s or Colitis, talk to staff about your experience and suggest ways the service could be better. Ask your IBD team if they are holding any service open days soon.
We’re campaigning across the UK to increase awareness and understanding of Crohn’s and Colitis. Too many people do not have access to high-quality care, services, and support – from diagnosis and flares to employment and benefits. We won’t stop campaigning until this changes and, with your help, change can happen sooner. Please join our campaigners’ network today and be the first to know about new campaigns, petitions, and consultations and how your voice is making a difference.
Below are some of the ways you could influence health services:
Take a look at our Accessibility and Inclusivity Guide, it can be useful to be aware of these issues. By understanding barriers to access, you can challenge organisers and service providers to address these areas if required.
There’s so many other simple and rewarding ways to get involved with our work:
The Readers Panel. You don’t need any special knowledge or training to join our Readers Panel – you just need to be living with Crohn’s or Colitis or be a parent of someone with the condition. We’d love your help to make sure our information and publications are clear, relevant and helpful for people just like you.
Volunteering. Our amazing volunteers make so much of our work possible. There are many ways to get involved depending on your interests and how much time you have to give. Find out more & get involved today.
Raise awareness. Your voice is important. We’re always looking for people to help raise awareness of Crohn's and Colitis. This could be by talking to a journalist, giving a quote for our publications or sharing your story in our members magazine, Connect. You can tell us about your experience here.
Support and be supported. There’s a huge online community of people with Crohn’s and Colitis, where you can find support and share your personal experiences. Here are some great places to start.
Take part in research. We’re driving world-class research - funding talented scientists to improve treatments and ultimately find a cure. Whether you’re a scientist, someone living with Crohn’s or Colitis or a family member or friend without the condition – you can help.
Become a Campaigner
None of our award-winning campaigns would be possible without our amazing community of dedicated campaigners. Your powerful voice really does matter.
We know it can be difficult to live with, or support someone living with these conditions. But you’re not alone. We provide up-to-date, evidence-based information and can support you to live well with Crohn’s or Colitis.
Our helpline team can help by:
Providing information about Crohn’s and Colitis.
Listening and talking through your situation.
Helping you to find support from others in the Crohn’s and Colitis community.
Signposting you to specialist organisations.
Please be aware we’re not medically or legally trained. We cannot provide detailed financial or benefits advice or specialist emotional support.
Please contact us via telephone, email or LiveChat - 9am to 5pm, Monday to Friday (except English bank holidays).