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Having Crohn’s or Colitis should not stop you from travelling. Many people with Crohn’s or Colitis travel, both in the UK and overseas. Planning ahead can help your trip go as smoothly as possible. But there can be a lot of things to think about, and this can sometimes feel daunting.
This information is designed for anyone affected by Crohn’s or Colitis, whether you live with one of these conditions or you’re travelling with someone who does.
Our information can help you:
This information has been written about Crohn’s Disease and Ulcerative Colitis using scientific research and public health advice. If you live with Microscopic Colitis, you may still find some of this information helpful.
If this information uses words you have not heard before, our page on medical words can give an explanation.
We need your help to improve our information to better support people with Crohn’s and Colitis. Fill in our short survey to let us know what we're doing well and how we can better meet your needs.
If you're planning to travel outside the UK, you may need to be vaccinated against some of the serious diseases found in other parts of the world. If possible, try to plan your trip as far in advance as possible. You should see your GP or visit a travel clinic at least six to eight weeks before you go, but some travel vaccines may need to be given earlier than this.
Planning well ahead can give you time to get health advice, order medicines and arrange any vaccinations you might need.
You may wish to tell your IBD team during a routine appointment if you’re planning to travel, especially if you are going overseas. They can give you advice about managing your Crohn’s or Colitis while you are away. For information about vaccinations, talk to your GP or a private travel clinic.
Even if you’re not planning a trip just yet, you could tell your IBD team if you want to travel to high-risk areas in the future. There are some vaccinations they might recommend you have before you start certain medicines for Crohn’s or Colitis.
Travelling regularly or going away for a long time may affect which Crohn’s or Colitis medicine is best suited to your lifestyle. Talk to your IBD team for advice on the best medicine for you. They may be able to recommend one that does not need to be kept in the fridge or one that may have long periods between doses. If you are travelling for a long time, you will need to think about where you can get your medicine from, and the rules and regulations around medicines in the country or countries you are visiting.
As someone who regularly travels internationally for work, there are always added complications & anxieties caused by my Crohn’s. From medication, potential flares and even the availability of non-triggering food at my destination, it is always important that I plan ahead and ensure I have fully considered my medical needs before travelling.
Charlie
Living with Crohn's
You might already know exactly where you’re going. But if you have not decided yet, there are some things you might want to think about.
You are more likely to stay well on your trip if your Crohn’s or Colitis has been under control for at least 3 months. We know Crohn’s and Colitis are unpredictable. You do not know when you might have a flare-up. But you might prefer to wait until your Crohn’s or Colitis is in remission before planning to travel.
If you can, try to plan your trip so you will not need any routine blood tests while you’re away. If this is not possible, you might be able to bring your tests forward so you’re up-to-date before you go.
Some people find their Crohn’s or Colitis get worse at certain times of year or during particular types of weather. If this is the case for you, check what the weather is like where you’re travelling at the time of year you’re planning to go.
Try to plan your trip to allow plenty of time to have any vaccinations you need.
Try to plan your trip to allow plenty of time to have any vaccinations you need.
You are more likely to stay well on your trip if your Crohn’s or Colitis has been under control for at least three months. However, we know that Crohn’s and Colitis can be unpredictable, and you do not know when you might have a flare-up. This can make planning for a holiday difficult and uncertain. Some people may prefer to wait until their Crohn’s or Colitis is in remission before planning to travel.
If you can, try to plan your trip so you will not need any routine blood tests while you’re away. If this is not possible, you might be able to bring your tests forward so you’re up-to-date before you go. Discuss this with whoever prescribes your medicine, such as your GP or IBD team.
Some people find their Crohn’s or Colitis gets worse at certain times of year, or during types of weather. If this is the case for you, check what the weather is like where you’re travelling at the time of year you’re planning to go. Also, there may be times of the day when you feel at your best. You could try to travel during these times and avoid times when you might not feel so good.
It’s not always easy to get the support you need when out and about at attractions and venues. To help with this, we’ve created a letter to give to staff. It can help explain what it’s like living with Crohn’s or Colitis and the impact the conditions can have on days out.
The letter also suggests changes that attractions and venues can make to better support people living with Crohn’s or Colitis.
If you are travelling to another country, you might need to have vaccinations before you go. The vaccinations you need will depend on where you are going. You can find out about the vaccinations you need by:
You may need to pay for your travel vaccinations. But some vaccinations may be free. If you need to pay for your vaccinations, this cost should be thought of as an essential part of your trip.
You should talk to your GP or a private travel clinic at least six to eight weeks before you travel. But some travel vaccines may need to be given earlier than this. For some vaccinations, you may need more than one dose. And some may take a while to work fully. Planning ahead can give you enough time to make sure you are fully vaccinated.
When you book your travel vaccinations, tell the travel clinic staff you have Crohn’s or Colitis, and what medicines you are taking. This might affect what vaccinations you can have.
Non-live vaccines are suitable for people with Crohn’s or Colitis. But if you take medicine that affects your immune system, your vaccine might not work as well as they do in other people. To know if your vaccination has worked, you may be able to have a blood test, known as a titre test, but this isn’t usually needed. The healthcare professionals giving you the vaccine will be able to tell you if you need a titre test.
Live vaccines might not be suitable for you if you’re on medicines that affect your immune system.
Live vaccines are made from weakened versions of bacteria or viruses. If your immune system is lowered, live vaccines could cause serious infections. You should wait three to four weeks after a live vaccine before starting treatment that affects your immune system.
Talk to your GP, vaccination specialist or IBD team about what vaccinations you can have safely if you are on, or have recently had:
You may also want to ask if you need to take precautions if you are in close contact with anyone who has recently had a live vaccine.
Live vaccinations you might need before travelling to certain places include:
There may be other live vaccines that you need to be given. Always speak to your GP or travel clinic about the vaccines you need before travelling.
Malaria is a serious infection spread by mosquitoes. There is no vaccination to prevent malaria. Having Crohn’s or Colitis does not seem to increase your risk of getting it. If you are travelling to an area where malaria is common, your doctor or travel clinic will recommend that you take anti-malarial tablets. You can find out about the risk of malaria for each country on the Travel Health Pro website.
You can find out how to avoid malaria, including how to reduce the risk of being bitten by mosquitoes, on the government website. You can also read our avoiding insect bites information in our staying well on your trip section.
There are lots of different anti-malarial tablets. Some of them might interact with some medicines for Crohn’s and Colitis. Your doctor or travel clinic can recommend anti-malarial tablets that are suitable for you. You will need to start most anti-malarial tablets a few days or weeks before you travel. It’s important that you continue taking this medicine when you return from travelling. This may be for up to four weeks after you get back, depending on the medicine. Always read the leaflet that comes with your medicine to understand how to take it and for how long.
Anti-malarial tablets are not available on the NHS and so are not free. You will need to pay for your anti-malarial tablets. If you need them, the cost should be thought of as an essential part of your trip.
If you are travelling outside the UK, it’s important to get travel insurance that covers you for Crohn’s or Colitis. To do this, you need to declare that you have Crohn’s or Colitis when you get your quote.
It’s sensible to buy travel insurance, even if you are feeling well or have been in remission for a while. If you are staying in the UK, it’s still a good idea to consider insurance in case you have to cancel your holiday because of your Crohn’s or Colitis.
If you choose to travel without insurance, or your policy excludes Crohn’s and Colitis, you might have to pay a lot if you need medical care. Healthcare in some countries can be very expensive.
If you are travelling in the European Economic Area and some other countries, you can get a health insurance card. This free card gives you access to state-provided healthcare for:
This care may be free, or it may cost the same as a local resident would pay. It does not include other costs, such as emergency travel if you need to be transported back to the UK.
The UK Global Health Insurance Card (GHIC) has replaced the European Health Insurance Card (EHIC). If you have an EHIC card, you can continue to use it until its expiry date. Once it expires, you can apply for a GHIC instead.
These health insurance cards are not a substitute for travel insurance. It’s a good idea to have both to be fully covered.
Find out more, including which countries you can use the GHIC card, on the NHS website.
Travel insurance may sometimes cost more if you have Crohn’s or Colitis. But it’s important to declare that you have it, even if it’s been under control for a long time. Otherwise, your policy might not cover emergency medical costs.
If you are currently being diagnosed, speak to your travel insurance company to ask if they are still able to provide cover, or if they need any additional information.
If your health or medicine has changed since you took out the travel insurance, you may need to tell your insurance company so that their records are up-to-date, and your insurance still covers you.
When you declare you have a medical condition, you may need to answer questions about it. The travel insurance company may want to know details about your health. This helps the insurance company work out how likely you are to make a claim. This can affect how much they charge for your policy. The cost is based on your medical conditions, but also:
Some insurance companies might ask you for a letter from your GP confirming that you’re fit to travel. Your doctor might charge you for this letter.
Prices can vary a lot between insurance companies. It may be worthwhile shopping around to find out what cover is available. If you already have an annual multi-trip travel insurance policy, you could check if it covers your Crohn’s or Colitis. If not, you might be able to pay extra to extend the cover.
· MoneyHelper is a government service that includes a directory of companies that specialise in travel insurance for people with medical conditions.
· The British Insurance Brokers’ Association also has a directory of companies that provide travel insurance for people with medical conditions.
If you need to claim on your travel insurance, you’ll need to have receipts for everything. This may include things like taxi fares to the hospital or healthcare centre, healthcare receipts or prescription receipts.
Try to take enough medicines for your whole trip, plus extra in case of delays. This includes any over-the-counter medicines you usually take. Some places have restrictions on what medicines you’re allowed to bring into the country. Check with the embassy of the country you’re visiting before you travel.
If you are travelling across different time zones, it can be difficult to work out when to take your medicines. You could carry on taking them based on the time it is in the UK. Or you could gradually adjust the time you take them to suit the time zone you are in. You might find it helpful to set an alarm to remind you when to take your dose. Or maybe download an app to remind you to take your medicine. If you’re not sure when to take them, ask your IBD team or pharmacist for advice.
Biologic medicines need to be stored in the fridge. It is OK to keep them at room temperature for short periods, but the exact length of time depends on which biologic you take. You can find out how long your medicine will last out of the fridge in the patient information leaflet or on the electronic medicines compendium.
For some biologics, you should not put your medicine back in the fridge if it’s reached room temperature. If your medicine needs to be kept cold while you’re travelling, you could use a cool bag or a cooling wallet. You can buy these online or from pharmacies.
If you are flying, you are allowed to take needles, syringes or injectable pens in your hand luggage. You will need a copy of your prescription or a letter from the healthcare professionals who provide your prescription. It’s a good idea to tell your airline in advance in case they have any additional restrictions. They might take your medicines and equipment to store them safely in the cabin during the flight. Checked-in luggage goes in the aeroplane hold, which can reach very low temperatures. Some medicines could freeze and become less effective.
You could buy a travel-sized sharps bin to dispose of your needles safely.
If you’re not a UK resident, you will need a letter to show that your medicine has been prescribed for you.
The letter must include:
You can only bring up to three months’ supply of your medicine with you.
Your doctor or pharmacist can tell you if your medicine contains a controlled drug. You can also check the drugs listed on the packaging of your medicine and search for them on the controlled drugs list.
You can find out more about bringing medicines into the UK on the UK Government website.
Talk to your dietitian or GP if you are planning to travel while on a liquid diet. They can advise you on what you need to do and help make sure you have the supplies you need. Make sure you have enough for your whole trip. Powdered products are easier to carry and take up less space in your luggage. But make sure the water you use to mix them is safe to drink.
If you are flying with ready-mixed liquid foods, you are allowed to take these in your hand luggage. You will need a copy of your prescription or a letter from your doctor. It’s a good idea to tell your airline in advance, especially if the amount you need will take you over the usual hand luggage allowance. You might have to go through extra security checks.
Having a stoma should not stop you from travelling, but it may take a bit more planning. Ask your stoma nurse for any tips or the most suitable products based on what you plan to do while you’re away. You might need a change in your prescription.
Order plenty of stoma supplies before you go. You may need more than usual, especially if you’re going somewhere hot or eating different foods. If you’re planning to be away for a long time, you could check if your supply company deliver where you’re going.
We offer a stoma supply home delivery service, in partnership with Bullen Healthcare, an independent dispensing appliance contractor. Visit Crohn’s & Colitis Healthcare Direct for more information.
If you’re flying, it’s sensible to pack your stoma supplies in your hand luggage if you can. This is in case your checked-in bags go missing. If you tell your airline in advance, they might be able to increase your luggage allowance. You will not be able to take scissors in your hand luggage. If you need to cut your bags or flanges to fit, do this before you travel.
When travelling, I pack several little 'kits'. Each one will contain everything I need in case I get into a pickle with my stoma. I then pack one in my hand luggage, one in my partner's and bigger ones in each of our cases....just in case a piece of luggage goes missing!
Rebecca
Living with Ulcerative Colitis
Each airport may have its own security procedures. Below are some hints and tips to help you through the security check.
The change in air pressure when you fly can make any gas in your body expand. This can lead to tummy pain or may cause more wind in your bag than usual. It might help to avoid fizzy drinks before you fly.
While you’re away, you can empty your bags into the toilet, put them in a disposal bag and throw them away in an ordinary bin.
For more information, including hints and tips on managing air travel with a stoma:
Long-term travelling with Crohn’s and Colitis can be challenging, but it is possible with careful planning.
I have lived with Crohn's Disease for many years now. In spite of this, I am a keen and active traveller. I like to explore remote places and I am not deterred from there being a lack of amenities and facilities.
Melvyn
Living with Crohn's
If you’re travelling outside the UK, the prescriber of your medicine should be able to prescribe enough medicines to last up to three months, if they think this is safe. If you are travelling for longer, you will need to arrange more supplies. You may be able to get a prescription from a local doctor in the country you are visiting. Or you may be able to get a private prescription from your usual doctor and get your extra supplies from a UK pharmacy before you travel. This will not be covered on the NHS.
Ask your IBD team for advice if you’re thinking of travelling long-term.
If you will need blood tests or an infusion while you are away, talk to your IBD team. They might be able to refer you to a hospital or health centre at your destination. Contact the centre in advance to find out what you need to do. You are likely to have to pay for tests or treatment outside the UK.
IBD Passport has more information on accessing healthcare abroad. You must register to do this.
As well as medicines and stoma supplies, there are extra things you might need to pack if you’re travelling with Crohn’s or Colitis.
If you have them, it’s a good idea to take:
Some people pack an emergency kit in case they have an accident. This could include:
We had always travelled the world, and when my son was diagnosed with Crohn’s at the age of 16, we were worried it would stop our adventures, but with the help of the Crohn’s & Colitis website and his IBD team, we continued to navigate the globe for the next ten years! Forward planning, the right paperwork and ensuring accommodation had fridges for injections we had amazing holidays!
Angela
Parent of a son with Crohn's
However you decide to travel, there are extra things to think about when you’re living with Crohn’s or Colitis.
People living with Crohn’s or Colitis have a higher risk of getting blood clots than other people. Blood clots are more likely to develop when you sit still for a long time. This includes long-haul flights or long journeys on the train or by car. Your risk may be higher if you have had surgery recently, such as in the last four weeks. You may also be at higher risk of blood clots during a flare-up.
You can find out more about blood clots on the NHS website or from Thrombosis UK.
Get medical help as soon as possible if you notice any of these signs. These symptoms can also happen in your arm or tummy if that's where the blood clot is.
If you’ve had surgery recently, your surgical team can advise you on when it is safe to drive. This may depend on:
You should also check with your car insurance company to make sure you are covered to drive after surgery. If you are travelling as a passenger after surgery, it’s sensible to make sure you can move around easily and sit comfortably before going on a trip.
Blue Badges let you park closer to where you’re going, often free or at a reduced cost. Some people with Crohn’s or Colitis might be able to get a Blue Badge. Having Crohn’s or Colitis may not automatically mean you can have a Blue Badge. Getting a blue badge may depend on:
You can apply for a Blue Badge online or through your local council:
You might find it helpful to use Crohn’s & Colitis UK’s letter of support for applications.
If you have a Blue Badge, you can check online to find out where you can park in the UK. You can also use it in many European countries. The government has a list of European countries where you can use your Blue Badge. Some countries outside Europe also recognise the Blue Badge scheme. The FIA Foundation and BlueBadgeParking.com have information on parking in other countries.
If you’re travelling by road, you might want to check what toilet facilities there are on your route. The Great British Toilet Map is a searchable website of public toilets in the UK. There are also lots of mobile apps that help you find accessible toilets. Some of these are worldwide and others cover particular countries. You can search “toilet finder” in your app store to find an app that suits you.
It can cause me a lot of anxiety not knowing where the toilets are when out and about. Having an app that tells me where the nearest one is gives me peace of mind.
Josh
Living with Colitis
Some accessible public toilets are kept locked. You might need a Radar key to open these. Crohn’s & Colitis UK members can request a Radar key as part of their membership package. You can also buy keys from Disability Rights UK. These keys work in the UK. Some other countries have a similar scheme. You can buy keys for these from the Radar Key Company too.
Some people take a travel toilet on long car journeys, just in case.
If you’re travelling by bus or coach, you could contact the company to check if there is a toilet on board. You may want to find out if you can book an aisle seat close to it.
Local Travel Cards
If you’re disabled, you may be eligible for discounted travel on local buses. See the information for your nation:
If you’re travelling by rail, you can get extra support, such as help carrying your luggage or getting on and off the train. You can ask for this when you arrive at the station, but it is a good idea to request it in advance. You can do this using National Rail’s Passenger Assist service. For train journeys within the UK, you should request support at least two hours before you travel. For international train journeys, you should request support at least 48 hours before you travel.
Your train operating company may be able to tell you if there are any toilets on your train. If you can, you may want to pre-book an aisle seat near the toilets. You can also check what facilities are available at the station.
If you receive disability benefits, such as Personal Independence Payments (PIP), you might be eligible for a Disabled Persons Railcard. This gives you money off rail travel in the UK.
See the information for your nation:
If you’re flying, you could contact your airline, tour operator or travel agent to find out what support they can offer. You might be able to pre-book a seat near a toilet or increase your luggage allowance, especially if you’re taking lots of bulky medicines or equipment. Let them know what support you need before you travel. You might need to provide a letter from your GP or IBD team. Make sure you allow enough time for this.
Tell your airline if you have any specific dietary needs.
Many airports offer sunflower lanyards to show that you have an invisible disability. You can usually get these from the airport’s assistance point. These may allow you to access priority lanes if you are not able to queue.
If you have a Can’t Wait Card, you could try showing it to the cabin crew, who may give you access to other toilets, should you need it.
The UK Civil Aviation Authority recommends that you do not fly for 10 days after having abdominal surgery. This is to reduce your risk of complications. You are likely to need a ‘fit-to-fly’ certificate or medical information form from your GP if you plan to fly sooner. You usually pay for this.
Talk to your surgeon, GP or IBD team about your risk of developing blood clots if you are flying within four weeks of surgery.
It's common to experience fatigue if you live with Crohn’s or Colitis. If your normal sleep pattern is affected by a long-haul flight, it can cause jet lag. This can cause tiredness and exhaustion. You can reduce the effects of jet lag by:
Before you travel:
During the flight:
After the flight:
Travelling can be exciting and rewarding, but it can also be tiring. Try to give yourself time to relax and rest if you need to. It’s just as important to look after yourself when you’re away as it is at home. Make sure you remember to take your medicines.
If you know certain foods make your symptoms worse, try to stick to things you usually eat at home. Some people worry about having an accident while they’re away. You could take a towel or a disposable bed pad to put under you while you sleep.
You might find our information on fatigue, food and living with Crohn’s or Colitis helpful.
Travelling with Crohn's or Colitis also means having plan A, B & C. It can mean doing one activity and needing to go back to your hotel room to rest. It can mean saying no to visiting a monument because you know there's no toilet facilities near. It can mean missing out on staple foods of the country you're in.
Alicia
Living with Colitis
Flare-ups are unpredictable. In some people, travelling to a different country, eating different food, being in a different climate or being at high altitude can trigger flare-ups. So it is best to be prepared. Before you go, discuss your plans with your IBD team as far in advance as possible. It may be useful to ask what you should do if you have a flare-up while you’re away.
If you need medical help while you’re away, you could:
Contact your insurance company if you have travel insurance. They can help you arrange medical treatment.
Check the IBD Passport network for information on how to access healthcare in other countries. You must register to do this, but it is free and quick to do.
Check the Foreign Office advice for the country you’re in. For many countries, it has information on how to get medical help.
Contact the nearest British Consul. They can help you find a local doctor.
Anyone travelling overseas is at risk of getting traveller’s diarrhoea. Having Crohn’s or Colitis does not seem to make you more likely to get traveller’s diarrhoea. But if you do get it, it might be more severe or last longer than in other people.
There are a few things you can do to reduce your risk of getting traveller’s diarrhoea:
TravelHealthPro has more information on travellers’ diarrhoea and food and water hygiene for travellers.
Most cases of traveller’s diarrhoea get better within a few days. If you get traveller’s diarrhoea, here are some things that might help:
For more suggestions on how to cope with diarrhoea and constipation, see our information on diarrhoea and constipation.
Get medical advice if:
If you’re in a hot country, you have diarrhoea or you’re exercising a lot, you’ll need to drink more than usual to avoid dehydration. Symptoms can include:
It’s important to drink plenty of non-alcoholic drinks. Try to avoid being very active in the hottest part of the day.
You might like to read our separate information on dehydration.
Insects can spread infections, including malaria. Try to avoid being bitten if you can, especially if you are taking medicines that lower your immune system.
To help protect yourself from insect bites, you could:
TravelHealthPro has more information on avoiding insect bites.
Some medicines used to treat Crohn’s or Colitis can make your skin more sensitive to sun damage and might increase your risk of skin cancer. Everyone needs to protect themselves from the effects of the sun. But it is especially important if you are taking Crohn’s or Colitis medicines that affect your immune system.
You can protect your skin from the sun by:
The NHS and TravelHealthPro have more information on sun protection.
We follow strict processes to make sure our information is based on up-to-date evidence and is easy to understand. We produce it with patients, medical advisers and other professionals. It is not intended to replace advice from your own healthcare professional.
We hope that you’ve found this information helpful. Please email us at evidence@crohnsandcolitis.org.uk if:
You can also write to us at Crohn’s & Colitis UK, 1 Bishop Square, Hatfield, AL10 9NE. Or you can contact us through our Helpline by calling 0300 222 5700.
We do not endorse any products mentioned in our information.
We know it can be difficult to live with, or support someone living with these conditions. But you’re not alone. We provide up-to-date, evidence-based information and can support you to live well with Crohn’s or Colitis.
Our helpline team can help by:
Providing information about Crohn’s and Colitis.
Listening and talking through your situation.
Helping you to find support from others in the Crohn’s and Colitis community.
Providing details of other specialist organisations.
Please be aware we’re not medically or legally trained. We cannot provide detailed financial or benefits advice or specialist emotional support.
Please contact us via telephone, email or LiveChat - 9am to 5pm, Monday to Friday (except English bank holidays).
If you need specific medical advice about your condition, your GP or IBD team will be best placed to help.
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