Crohn’s and Colitis Care in the UK: The Hidden Cost and a Vision for Change

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Let’s not go back to normal as we come out of the pandemic. For too many, normal is having Crohn’s or Colitis overwhelm so many aspects of their life, that they’re just getting by. 

Let’s create a better society for people with Crohn’s and Colitis to thrive, not just survive. Will you help us? 

The first step is an urgent need for better care for everyone affected by Crohn’s or Colitis. 

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Working with 17 organisations as part of  IBD UK, our 2021 report looked at the experiences of over 10,000 people with Crohn’s and Colitis and 72% of IBD services across the UK. 

It revealed that care urgently needed to be improved. In particular: 

A new round of IBD UK benchmarking will be taking place in the spring of 2023 to see what has and hasn't changed over the last four years.

Get involved to help us improve care and make Crohn’s and Colitis visible.

  • Join our Campaigns Network - together our voices can bring about change Share your story so we can put your experiences at the heart of our work.
  • Read your local service report and ask your IBD team what they are doing with the findings.
  • Ask your IBD team about ways to get involved in improving your care – you might find our toolkit helpful with this.
  • Fundraise to support our work to improve services and care.


Become a Campaigner

None of our award-winning campaigns would be possible without our amazing community of dedicated campaigners. Your powerful voice really does matter. 


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Helpline service


We know it can be difficult to live with, or support someone living with these conditions. But you’re not alone. We provide up-to-date, evidence-based information and can support you to live well with Crohn’s or Colitis.

Our helpline team can help by:

  • Providing information about Crohn’s and Colitis.

  • Listening and talking through your situation.

  • Helping you to find support from others in the Crohn’s and Colitis community.

  • Signposting you to specialist organisations.

Please be aware we’re not medically or legally trained. We cannot provide detailed financial or benefits advice or specialist emotional support.

Please contact us via telephone, email or LiveChat - 9am to 5pm, Monday to Friday (except English bank holidays).

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If you need specific medical advice about your condition, your GP or IBD team will be best placed to help.

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