External Resources for Researchers

Scientist In Lab

Below you will find a list of resources that you may find useful for your research.

Scientist In Lab

IBD BioResource

Have you thought about using the IBD BioResource to support your study?

The IBD BioResource has recruited over 43,000 patients across the UK with Crohn’s or Colitis. Detailed clinical data (including treatment response, surgery, Montreal classification, extra-intestinal manifestations etc) are stored together with detailed genetic data on each participant.

Researchers in the UK can request access to the samples and data held in the IBD Bioresource. Studies may involve:  

  • access to data only (e.g., genetic or clinical information)  
  • access to data and samples (e.g., medication history and stored DNA) 
  • recall studies (e.g., request of new samples, completing questionnaires or taking part in clinical trials) 

IBD-EII

IBD-EII is a platform is intended to help share evidence-based data regarding inflammatory bowel disease in a summarized way. Here, you can find summaries of relevant trials and studies that have been published about IBD.


Patient & Public Involvement Resources

We have a variety of resources to assist you with patient public involvement in research.

  • Our Research Involvement Support webpage can help you recruit people affected by Crohn’s or Colitis to take part in or shape your research.
  • We provide training for patient and public involvement (PPI) representatives taking part in research
  • We also have dedicated Research Champions who volunteer their time and share their experiences in our partnerships with researchers across the UK. If you would like a research champion to be part of your research project, please get in touch via email.

Funding

Visit our Looking for Funding webpage to find the latest information about our research grant calls. You can also visit our Other Funding for IBD Research webpage to find out about opportunities from other grant-making bodies.


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Helpline service

Helpline
Service

We know it can be difficult to live with, or support someone living with these conditions. But you’re not alone. We provide up-to-date, evidence-based information and can support you to live well with Crohn’s or Colitis.

Our helpline team can help by:

  • Providing information about Crohn’s and Colitis.

  • Listening and talking through your situation.

  • Helping you to find support from others in the Crohn’s and Colitis community.

  • Signposting you to specialist organisations.

Please be aware we’re not medically or legally trained. We cannot provide detailed financial or benefits advice or specialist emotional support.

Please contact us via telephone, email or LiveChat - 9am to 5pm, Monday to Friday (except English bank holidays).

If you need specific medical advice about your condition, your GP or IBD team will be best placed to help.

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