Isobel IBD Nurse

An update on our nursing strategy

Published 01 June 2021

The Nursing Strategy here are Crohn's & Colitis UK continues apace, aiming for all of our supporters to have contact with a suitably trained IBD nurse specialist.  We are so grateful to everyone at the charity for the continued support and investment in the IBD nursing community, which is so valued.

Group of professional womenWe continue to run our nursing programme with 14 Crohn’s & Colitis UK nurse specialists across the UK. They work alongside us, whilst working in the NHS, helping to implement the charity’s strategy in their services whilst we support them to complete their MSc in Advanced Clinical Practice, or to credential through the RCN as Advanced clinical practitioners in Inflammatory Bowel Disease. Applications to join the programme in September 2021 have now closed. We have had a brilliant response and will be interviewing in July.

Advice line training team

Our advice line training restarted in April 2021 – now being delivered virtually. We aim to really help nurses develop their advice line services, skilling them in communication and organisational skills. Every time we advertise it, we are inundated with applications, and two more study days are coming this year.

Excitingly, we are leading the RCN IBD Network and Gastroenterology Forum to review the RCN Roles Descriptors for IBD nurse specialists. We have a fabulous project group of nurses from all backgrounds and levels, and aim to publish a really useable, comprehensive career framework for all nurses working in IBD as a specialty in May 2022.

Over the next few weeks, we will be in touch with all IBD services to update our ‘Find an IBD nurse specialist’ map, which is a fantastic resource for patients and health care professionals looking to contact services locally. Keep an eye out!

Lisa and I are always here to help nurses from any background with service / career issues.

We work one day a week and will always respond to requests for advice or to give you more information about the nursing strategy and how it can help you in practice. We also send out information through the RCN IBD network emails and on the RCN IBD Facebook page, so please sign up to the page, or join your local network group to keep getting updates!

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Helpline service


We know it can be difficult to live with, or support someone living with these conditions. But you’re not alone. We provide up-to-date, evidence-based information and can support you to live well with Crohn’s or Colitis.

Our helpline team can provide information on a range of subjects including:

  • Managing Symptoms
  • Disability benefits
  • Medication
  • Diet
  • Test and diagnosis
  • Wellbeing
  • Employment
  • Help to find support from others living with the condition

Please contact us via telephone, email or LiveChat - 9am to 5pm, Monday to Friday (except English bank holidays).

If you need specific medical advice about your condition, your GP or IBD team will be best placed to help.