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None of our award-winning campaigns would be possible without our amazing community of dedicated campaigners. Your powerful voice really does matter.
The IBD Patient Panel model is well developed and used across the UK, please take a look at our top tips for running an IBD Patient Panel below. Patient panels can be used to gather feedback from patients about their experiences and expectations, which can then be used in service planning and review, they can also be referred to for advice throughout a piece of service development work or research.
The primary purpose of an IBD Patient Panel is to discuss ways local Crohn’s and Colitis services could be improved - not to take direct action to improve services. Patient Panels don’t usually get involved in:
These activities may need to be done by others such as a Local Network (fundraising) or by the service itself. Nevertheless, a Panel could get involved in the discussions about the content of websites/ leaflets or the need for a buddying service.
None of our award-winning campaigns would be possible without our amazing community of dedicated campaigners. Your powerful voice really does matter.
We know it can be difficult to live with, or support someone living with these conditions. But you’re not alone. We provide up-to-date, evidence-based information and can support you to live well with Crohn’s or Colitis.
Our helpline team can help by:
Providing information about Crohn’s and Colitis.
Listening and talking through your situation.
Helping you to find support from others in the Crohn’s and Colitis community.
Signposting you to specialist organisations.
Please be aware we’re not medically or legally trained. We cannot provide detailed financial or benefits advice or specialist emotional support.
Please contact us via telephone, email or LiveChat - 9am to 5pm, Monday to Friday (except English bank holidays).
If you need specific medical advice about your condition, your GP or IBD team will be best placed to help.
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