Primary care diagnostic pathway for lower GI conditions

Ana Ibarra, IBD Clinical Nurse Specialist
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Putting people on the path to a correct diagnosis

Every day, people throughout the UK visit their GP to find out why they have gut problems. Whether it’s coeliac disease, irritable bowel syndrome, Crohn’s disease, colitis or another condition, getting a diagnosis is not always easy.

If you have problems with your gut, not knowing the steps your GP may take or what will happen next can be stressful. It can also be difficult for healthcare professionals to always know the current best practice.

How we can help

We are a partnership of gut-related charities, healthcare professional organisations and patients. We have come together to improve how people are diagnosed for gut problems.

Whether you’re a healthcare professional, patient or parent of a young person with symptoms, we hope that our information ultimately helps people to get a correct diagnosis quickly, ensuring that they get the care they need.

Our specialist information will include support on:

· When to see a GP

· How to get the best out of medical appointments

· Which conditions the GP may consider

· Tests and investigations that might be needed

· What to do once you have the results

For healthcare professionals, our information will outline the best practices to help patients get a diagnosis for lower gastrointestinal symptoms. This includes:

· Considerations to make when taking a history

· Symptoms people may present with

· Conditions to consider

· Tests and investigations to carry out

· When to make a referral to secondary care

Together, we can make an impact - whatsupwithmygut.org.uk

If you have any questions about this work, or would like to get involved with the project, get in touch at healthservices@crohnsandcolitis.org.uk

Who developed the diagnostic pathway?

 

Charities and organisations

The Association of Coloproctology of Great Britain & Ireland

British Society of Gastroenterology (BSG)

British Society of Paediatric Gastroenterology, Hepatology and Nutrition (BSPGHAN)

Coeliac UK

Crohn's & Colitis UK

Crohn's in Childhood Research Association (CICRA)

Guts UK

IBS Network

 

Steering Group

Hilary Croft - CEO of Coeliac UK

Dr Keith Lindley - Consultant and Honorary Reader in Paediatric Gastroenterology

Dr Charles Maxwell-Armstrong - Consultant Colorectal and General Surgeon

Alison Reid - CEO of IBS Network

Sarah Sleet - Former CEO of Crohn's & Colitis UK

Julie Thompson - Information Manager for Guts UK

Heidi Urwin - Director of Evidence and Policy for Coeliac UK

Dr Andrew Veitch - President of British Society of Gastroenterology

 

Task and Finish Group

Dr Sarah Alderson - GP

Dr Ian Arnott - Consultant Gastroenterologist in Scotland

Debra Attwood (co-chair) - Lived experience of Ulcerative Colitis

Pearl Avery - IBD Nurse Specialist

Mr Sas Banerjee - Consultant Colorectal Surgeon

Grace Brownfield - Lived experience of Coeliac Disease

Dr Shahida Din (co-chair) - Consultant Gastroenterologist in Scotland

Dr Barney Hawthorne - IBD Lead in Wales

Tor Maxted - Lived experience of IBS

Dr Andrew Murdock - Consultant Gastroenterologist in Northern Ireland

Dr Astor Rodrigues - Paediatric Consultant Gastroenterolgist

Dr Christian Selinger - Consultant Gastroenterologist

Dr Leena Sinha - Chair of BSG small bowel and nutrition group

Dr Neal Tucker - GP

Prof James Turvill - Consultant Gastroenterologist, York and Scarborough Teaching Hospitals NHS FT

Dr Jeremy Woodward - Member of BSG small bowel and nutrition group

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Helpline service

Helpline
Service

We know it can be difficult to live with, or support someone living with these conditions. But you’re not alone. We provide up-to-date, evidence-based information and can support you to live well with Crohn’s or Colitis.

Our helpline team can help by:

  • Providing information about Crohn’s and Colitis.

  • Listening and talking through your situation.

  • Helping you to find support from others in the Crohn’s and Colitis community.

  • Signposting you to specialist organisations.

Please be aware we’re not medically or legally trained. We cannot provide detailed financial or benefits advice or specialist emotional support.

Please contact us via telephone, email or LiveChat - 9am to 5pm, Monday to Friday (except English bank holidays).

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If you need specific medical advice about your condition, your GP or IBD team will be best placed to help.

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