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Campaigning for early diagnosis

It is taking too long for people with Crohn’s and Colitis to be diagnosed. Whether you live with Crohn’s or Colitis, or know someone affected by the conditions, we need your help to bring about change. 

You told us early diagnosis of Crohn’s or Colitis would have made the biggest difference to your life. We listened.

Every year, 25,000 people get diagnosed with Crohn’s or Colitis. However we know that more than a quarter have been waiting for a diagnosis for over a year. Nearly half end up in A&E while waiting for a diagnosis. Delays to diagnosis affect people’s ability to continue education and work, limits their treatment options and increases their risk of being hospitalised or needing emergency surgery.

We are here to change that. Back our call for early diagnosis, and reduce the burden of delayed diagnosis on the patients and the NHS.

We are working with politicians and health leaders to take three actions: 

  • Back our public campaign, Cut the Crap: Check for Crohn’s and Colitis, and help people take control of their health.
  • Support our call for a national diagnostic pathway for people with lower gastrointestinal symptoms.
  • Prioritise endoscopies by patient need, to get people diagnosed and on a treatment plan, rather than on an operating table.

How to get involved

Whether you’ve been recently diagnosed, waiting for a diagnosis or know someone affected by Crohn’s and Colitis, we need you to get involved any way you can. From sharing our symptom checker, to campaigning, or supporting our work there are lots of ways you can get involved. 

You can help us by backing our call for early diagnosis

We can’t achieve early diagnosis without your help. Whether you live with Crohn’s or Colitis, or know someone affected by the conditions, we need your help. Back our call for early diagnosis today.

We are also working with healthcare professionals and health leaders to ensure that people with suspected Crohn’s and Colitis are appropriately prioritised for diagnosis and receive the best possible treatment.


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Helpline service


We know it can be difficult to live with, or support someone living with these conditions. But you’re not alone. We provide up-to-date, evidence-based information and can support you to live well with Crohn’s or Colitis.

Our helpline team can help by:

  • Providing information about Crohn’s and Colitis.

  • Listening and talking through your situation.

  • Helping you to find support from others in the Crohn’s and Colitis community.

  • Signposting you to specialist organisations.

Please be aware we’re not medically or legally trained. We cannot provide detailed financial or benefits advice or specialist emotional support.

Please contact us via telephone, email or LiveChat - 9am to 5pm, Monday to Friday (except English bank holidays).

Live chat

If you need specific medical advice about your condition, your GP or IBD team will be best placed to help.

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