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New Patient Engagement Toolkit launched

We believe that Crohn's and Colitis care only improves when the voices of those who experience it first-hand are listened to. Voices like yours. That's why we're are excited to announce the launch of Crohn’s & Colitis UK’s new online Patient Engagement Toolkit.

This new toolkit provides practical resources and information to help develop IBD healthcare services with the power of the patient voice.

Patients have power, they are experts through their experience of living with Crohn’s and Colitis. The best people to say what works and what doesn’t in IBD services are the patients. We want to help patients recognise that power and use it to improve healthcare services through different engagement opportunities.

Patient Engagement Team

Over time, the toolkit will evolve and grow as we listen to more and more voices from the Crohn's and Colitis community, ensuring that it does what you need, as a patient or a healthcare professional. We would love your feedback on the toolkit and to hear any suggestions on how we can improve it in the future.

► Give us your feedback and make your voice heard

The toolkit has been brought to you by our new Patient Engagement Team: Susie Slattery as our Patient Engagement Manager and Gemma Winsor as our Patient Engagement Officer.

Susie (above left) and Gemma (right) want to see the same high-quality care and support for everyone with Crohn's and Colitis, and will be working with you to ensure patients are involved in the development and improvement of healthcare services in the UK every step of the way.

If you have any other questions, comments or would like to get involved in developing the toolkit further, we would be happy to hear from you. Please email the Patient Engagement Team.

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Helpline service


We know it can be difficult to live with, or support someone living with these conditions. But you’re not alone. We provide up-to-date, evidence-based information and can support you to live well with Crohn’s or Colitis.

Our helpline team can help by:

  • Providing information about Crohn’s and Colitis.

  • Listening and talking through your situation.

  • Helping you to find support from others in the Crohn’s and Colitis community.

  • Signposting you to specialist organisations.

Please be aware we’re not medically or legally trained. We cannot provide detailed financial or benefits advice or specialist emotional support.

Please contact us via telephone, email or LiveChat - 9am to 5pm, Monday to Friday (except English bank holidays).

If you need specific medical advice about your condition, your GP or IBD team will be best placed to help.

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