Tasha: Make it your choice and keep busy
I find it helps finding things to do in the house that don't make you think you have to stay in. I'm a gamer so I'll play a video game, or we have family board games and I also watch YouTube videos. Social media has been my absolute saviour for helping me stay in touch with everyone over time. I've been learning to cook recently which has kept me busy during the day when everyone's at work or out and about. It's difficult missing out, but my health and life are far more important than a night out with the girls.
Lauren: Plan your day and keep in touch
I was diagnosed in mid-2018 and have since had regular inpatient hospital stays due to flare-ups, including last October when I needed urgent surgery, so I now have an ileostomy bag. Since being on Ustekinumab I've picked up several infections that I've struggled to fight off including ear and chest infections lasting around 6 weeks, so I am very familiar with being isolated at home!
Due to Coronavirus, I've had to cancel a trip for next week, but I've also previously cancelled several holidays due to being unwell.
My work is extremely supportive, both now during the coronavirus outbreak and in the past.
- Plan your day so you still feel a sense of achievement at the end of it.
- Create healthy distractions such as reading, exercise such as yoga, baking or watching a new series
- Keep in touch! It's easy to feel lonely when you lose the ability to have face to face interaction, but I've found using video-calling such as Facetime to contact friends and family invaluable in keeping my spirits up
Now is the time to come together
As you can imagine, our teams are working tirelessly to help as many people as possible at this stressful time. We want to ensure we are there for everyone, but we can only do this with your support. Whatever you can give, will make a difference.