“Missing out at university due to Crohn's hasn’t stopped me from thriving in my career.” - Amy’s Story

After experiencing painful symptoms for several years, Amy was diagnosed with Crohn's during her first year of university. Managing to graduate from university despite experiencing difficult and prolonged flare-ups, Amy now works in the TV and film industry and is passionate about advocating for people with Crohn's or Colitis in the workplace.


I first started experiencing symptoms around 8 years old. I would get tummy pain and blood in my stool. When I went to the doctors, I was told I was just going through puberty or experiencing bad period pains, but I knew it was much more. I didn’t feel heard. My teenage years flew by, and by the time I was looking at going to university, Bristol seemed like a great choice as it was local to me.


My symptoms began to intensify during my first year. I was experiencing a lot of pain, taking frequent trips to the toilet and at times, didn’t leave the house for weeks on end.

I started to miss a lot of classes, and although some lecturers were sympathetic, others were less so, and I started to worry how this would impact my degree. I decided to go to the doctor’s once more, and this time I felt heard. I underwent many tests, including colonoscopies, and after consultations for about a year, I was finally diagnosed with Crohn’s Disease.

I wasn’t living the fun and exciting university life I had envisioned and felt this had been stolen from me thanks to my undiagnosed symptoms.


Amy

Living with Crohn's



To hear my diagnosis felt validating after years of being told there was nothing wrong. It was once I was diagnosed, that I finally felt supported. I have specifically felt the most support and empathy from IBD nurses. They have always been so understanding and are swift to respond if I ever have a question or concern. Having such great support from them has also been a relief for my mum and dad, as she knows I finally have a larger support system to rely on. 


Since I’ve left university, I have been embracing getting stuck into my dream career, working in TV and film production. Throughout my degree, I always questioned whether it would even be possible for me to achieve this dream, given my condition. But now, I’m determined to raise awareness in the industry about Crohn’s and show other people that no matter what your condition, you can thrive and be successful in a workplace. I found a great internship; with a company called Babassa, who strive to support underrepresented people in the industry.

I’m lucky that my employer is very understanding. It can be a lot for a workplace to handle, with regular appointments and time off work. But an understanding and inclusive workplace should be there to support you.

Sometimes working in my industry can be challenging, with long shifts and catering options that aren’t always suitable for my dietary needs. But I’m proud to have persevered and have worked on some fantastic television projects since I started my career, including BBC’s Chelsea Flower Show. I’ve even met other people in the industry with IBD conditions.

Throughout my career so far, I have also learned that it’s important to be open and honest with employers about what support you might need from them at work. I’d say making employers aware at interview stage is a great way to test whether they will be able to offer you what you need.


Amy

Living with Crohn's


My condition still impacts me each day, but I feel so proud of what I have achieved, and I’m passionate about advocating for worker’s rights who experience IBD conditions, especially in the TV and film industry. I’d love to help other young people who want to break into the industry and who have an IBD condition, to thrive. Whatever your goal may be, nothing is impossible!

Want to learn more about being at university with Crohn's or Colitis?

Why not check out our 'Freshers Checklist' created by another one of our supporters - Emily. She shares her top tips for managing IBD if you are starting college or university. 


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Helpline service

Helpline
Service

We know it can be difficult to live with, or support someone living with these conditions. But you’re not alone. We provide up-to-date, evidence-based information and can support you to live well with Crohn’s or Colitis.

Our helpline team can help by:

  • Providing information about Crohn’s and Colitis.

  • Listening and talking through your situation.

  • Helping you to find support from others in the Crohn’s and Colitis community.

  • Providing details of other specialist organisations.

Please be aware we’re not medically or legally trained. We cannot provide detailed financial or benefits advice or specialist emotional support.

Please contact us via telephone, email or LiveChat - 9am to 5pm, Monday to Friday (except English bank holidays).

If you need specific medical advice about your condition, your GP or IBD team will be best placed to help.

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