Unstoppable: Your stories

Last reviewed: March 2022


The stories in this guide are just a few examples of ordinary people with Crohn’s or Colitis who have overcome extraordinary challenges.

They want to share their experience to show you that you’re not alone – and that there are lots of people out there who understand what you’re going through and can help.

Together, we give each other comfort, confidence and strength. Together we are... unstoppable.

Download this information (PDF)

  • Help and support from Crohn's & Colitis UK

    We offer more than 50 publications on many aspects of Crohn’s DiseaseUlcerative Colitis and other forms of Inflammatory Bowel Disease. You may be interested in our comprehensive booklets on each disease, as well as the following publications:

    • Living With Crohn's or Colitis
    • Fatigue
    • Taking Medicines
    • Managing Bowel Incontinence
    • Living With a Stoma

    If you would like a printed copy of a booklet or information sheet, please contact our helpline.

    Our helpline is a confidential service providing information and support to anyone affected by Crohn's or Colitis. Our team can:
    • help you understand more about Crohn's or Colitis, diagnosis and treatment options
    • provide information to help you to live well with your condition
    • help you understand and access disability benefits
    • be there to listen if you need someone to talk to
    • help you to find support from others living with the condition

    Call us on 0300 222 5700 
    Email helpline@crohnsandcolitis.org.uk
    Use our LiveChat

    Crohn’s & Colitis UK Forum
    This closed-group community on Facebook is for everyone affected by Crohn's or Colitis. You can share your experiences and receive support from others.

    Crohn’s & Colitis UK Patient Panels
    IBD Patient Panels, which are supported by Crohn’s & Colitis UK, are groups of people with Crohn's or Colitis who use their perspective as a patient to work with their IBD healthcare team to help improve their hospital services. For more information on patient panels, please or contact our Patient Engagement Team.

    Crohn’s & Colitis UK Local Networks
    Our Local Networks of volunteers across the UK organise events and provide opportunities to get to know other people in an informal setting, as well as to get involved with educational, awareness-raising and fundraising activities. You may find just being with other people and realising that you are not alone can be reassuring. Families and relatives may also find it useful to meet other people with Crohn's or Colitis. All events are open to members of Crohn’s & Colitis UK


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Helpline service

Helpline
Service

We know it can be difficult to live with, or support someone living with these conditions. But you’re not alone. We provide up-to-date, evidence-based information and can support you to live well with Crohn’s or Colitis.

Our helpline team can provide information on a range of subjects including:

  • Managing Symptoms
  • Disability benefits
  • Medication
  • Diet
  • Test and diagnosis
  • Wellbeing
  • Employment
  • Help to find support from others living with the condition

Please contact us via telephone, email or LiveChat - 9am to 5pm, Monday to Friday (except English bank holidays).

If you need specific medical advice about your condition, your GP or IBD team will be best placed to help.