The experience and impact of treatment amongst individuals with Crohn’s Disease

Researchers at University of Chichester are exploring the challenges of treatment faced by people with Crohn's disease. 

The aim of the study is to research the idea of 'treatment burden' by looking at the impact self-management and personal care has on people with Crohn's disease. Actions involved in treatment, including taking medication, self-monitoring, and lifestyle changes, could have a negative effect on someone's wellbeing, due to additional pressures of time, cost, and exhaustion. By understanding more about how treatment affects people with Crohn's the researchers hope to help improve health policy, support, and medication selection in the future.

Your participation will involve an audio and video recorded interview that will take approximately 75 minutes of your time. This will take place online through Microsoft Teams. You will be asked about experiences related to medication, interactions with healthcare professionals and the healthcare system, and the impact of treatment on your personal life.

For example, questions may include:
- Do you feel supported and heard by your healthcare team and consultant?
- How do you feel when you take medication/receive treatment?
- Has taking medication/receiving treatment changed the way you view yourself?

After transcribing interviews, audio and video recordings will be permanently deleted.

You can participate in this research study if you:
- Are aged 21 years or over.
- Have received a Crohn’s Disease diagnosis within the last year.
- Are currently receiving medication to treat your Crohn’s, supplied by the NHS.
- Are a fluent English language speaker.
- Have access to smart device with microphone and Microsoft Teams software.

If you are interested in taking part, or would like more information about the study, please complete the form below.

By entering your details, you are not committing to take part, but your details will be passed onto the researcher, who will contact you with more information. You will have the opportunity to change your mind at any time.

This research study is NOT organised by Crohn's & Colitis UK and, therefore, we cannot take responsibility for your involvement in the research.

Opportunity posted 22 February 2024

Want to get involved in research?

The best quality research happens when people with Crohn's and Colitis are involved, and you can make a difference at every stage of research.


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