Questionnaire: living with a long-term condition

Researchers at King’s College London are looking for people living with a long-term physical health condition, such as Crohn's or Colitis, to take part in a study to test a new questionnaire. The new questionnaire has been designed to measure mood in people living with a long-term physical health condition.

It is already known that it is common for people with long-term health conditions to experience mental distress, such as anxiety and depression. This study is aimed at creating and testing a new questionnaire, which measures the mood and emotions of people living with long-term condition. The hope is that being able to accurately measure the emotional and mental challenges of living with a long-term condition will lead to better support for people with long-term conditions, aimed at their specific needs.

The study is taken online, involving two questionnaires. The first questionnaire takes about 20 minutes to complete and the second one takes 5 minutes to complete. The questionnaires will ask people about their mood and experience of living with a long-term health condition. 

All participants who take part in our study are entered into a draw to win 1 of 5x £100 vouchers.

People who can take part in this study are:

- over the age of 18
- who are living with a long-term condition (e.g. people with Crohn's or Colitis)
- UK residents
- have an email address
- can write and speak English (in order to understand/complete study procedures)

If you are interested in taking part, or would like more information about the study, please complete the form below.

By entering your details, you are not committing to take part, but you will be redirected to the study's Linktree page, where you will find links to partake in the study, and links to their social media pages. You will have the opportunity to change your mind at any time.

This research study is NOT funded or organised by Crohn's & Colitis UK and, therefore, we cannot take responsibility for your involvement in the research.

Opportunity posted 20 July 2023

Want to get involved in research?

The best quality research happens when people with Crohn's and Colitis are involved, and you can make a difference at every stage of research.

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We know it can be difficult to live with, or support someone living with these conditions. But you’re not alone. We provide up-to-date, evidence-based information and can support you to live well with Crohn’s or Colitis.

Our helpline team can help by:

  • Providing information about Crohn’s and Colitis.

  • Listening and talking through your situation.

  • Helping you to find support from others in the Crohn’s and Colitis community.

  • Signposting you to specialist organisations.

Please be aware we’re not medically or legally trained. We cannot provide detailed financial or benefits advice or specialist emotional support.

Please contact us via telephone, email or LiveChat - 9am to 5pm, Monday to Friday (except English bank holidays).

If you need specific medical advice about your condition, your GP or IBD team will be best placed to help.

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