Researchers at University of Greenwich are looking for adults diagnosed with Crohn's or Colitis and either living with a stoma or due to have stoma forming surgery to take part in a new study looking at developing a patient-reported outcome measure to track adjustment to stoma over time.
Researchers at University of Greenwich are developing a patient-reported outcome measure (PROM) to track how people adjust to living with a stoma.
They would like people to take part in a study to review the draft patient-reported outcome measure (PROM) and check how easy it is to use. They also want people to complete it twice, two-weeks apart to check it is reliable over time.
There are two parts to the study and you can choose to take part in one or both parts.
Part one is cognitive interviews one-to-one with a researcher. You will be asked to complete the draft PROM and provide feedback to the researchers on how easy it is to understand. This will take around 30 minutes.
Part two is validation. You will be asked to compete the PROM twice, two-weeks apart. You will be asked to complete it online. This will take around 20-40 minutes.
To take part you must be:
The researchers want to develop this measure to assess patients before surgery and identify those who may struggle to adjust. This will allow patients to be offered additional support and improve clinical practice.
By entering your details, you are not committing to take part, but you will be forwarded to the Patient Information Sheet for more information. You will have the opportunity to change your mind at any time. Once you have read the PIS, if you are interested in taking part in this study please email: tiffeny.james@greenwich.ac.uk
This research study is NOT organised by Crohn's & Colitis UK and, therefore, we cannot take responsibility for your involvement in the research.
Opportunity posted 31 March 2025
The best quality research happens when people with Crohn's and Colitis are involved, and you can make a difference at every stage of research.
This page has been saved in your personal space. Go to “My Page” to view all saved pages.
We know it can be difficult to live with, or support someone living with these conditions. But you’re not alone. We provide up-to-date, evidence-based information and can support you to live well with Crohn’s or Colitis.
Our helpline team can help by:
Providing information about Crohn’s and Colitis.
Listening and talking through your situation.
Helping you to find support from others in the Crohn’s and Colitis community.
Providing details of other specialist organisations.
Please be aware we’re not medically or legally trained. We cannot provide detailed financial or benefits advice or specialist emotional support.
Please contact us via telephone, email or LiveChat - 9am to 5pm, Monday to Friday (except English bank holidays).
If you need specific medical advice about your condition, your GP or IBD team will be best placed to help.
Would you like to save the changes made to this page?
Your details were successfully saved.
