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IBD Disk 2.0 Delphi consensus process

Researchers would like people living with inflammatory bowel disease to complete a survey looking at the IBD-related impacts on quality of life. 

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Researchers would like to hear from people living with Inflammatory Bowel Disease (IBD) to help them define the IBD-related burden from a global patient perspective. 

The IBD Disk is a widely used questionnaire that assesses IBD-related burden across 10 categories. The goal of this project is to identify the most important impacts contributing to a high burden of IBD from the patient perspective.

 

If you take part you will be asked to complete 2 surveys. All responses are anonymous. 

To take part you must be:

  • over 18
  • living with Crohn's, Colitis or IBD unclassified.

If you are interested in taking part, or would like more information about the study, please complete the form below.

By entering your details, you are not committing to take part, but you will be forwarded to the study webpage. You will have the opportunity to change your mind at any time.

This research study is NOT organised by Crohn's & Colitis UK and, therefore, we cannot take responsibility for your involvement in the research.

Opportunity posted 02 September 2025

Want to get involved in research?

The best quality research happens when people with Crohn's and Colitis are involved, and you can make a difference at every stage of research.

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Want to get involved in research?

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We know it can be difficult to live with, or support someone living with these conditions. But you’re not alone. We provide up-to-date, evidence-based information and can support you to live well with Crohn’s or Colitis.

Our helpline team can help by:

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