Researchers in the Fistula Research Unit at St Mark's Hospital are looking to recruit one lived experience representative to a perianal Crohn's Disease steering group.
This is an exciting opportunity to be part of the steering group for the perianal Crohn’s Disease Priority Setting Partnership (PSP) being developed by researchers at St Mark's Hospital. The project aims to develop a "Top 10 list" of unanswered research questions regarding perianal Crohn's disease, in order to guide future research.
Researchers are looking for someone with lived experience of perianal Crohn's Disease.
The Steering Group will include representatives of patients, carers, and clinicians. Members will need to be fully engaged in the process and have the time to carry out the work involved. The Steering Group will meet once a month virtually, for around 1-2 hours, with the first meeting at 7pm on August 19th. Participants will be reimbursed for their time.
If you are interested in this opportunity and would like more information please email Theo Pelly (Fistula Research Fellow) h.pelly@nhs.net
This research study is NOT organised by Crohn's & Colitis UK and, therefore, we cannot take responsibility for your involvement in the research.
Opportunity posted 15 July 2024
The best quality research happens when people with Crohn's and Colitis are involved, and you can make a difference at every stage of research.
This page has been saved in your personal space. Go to “My Page” to view all saved pages.
We know it can be difficult to live with, or support someone living with these conditions. But you’re not alone. We provide up-to-date, evidence-based information and can support you to live well with Crohn’s or Colitis.
Our helpline team can help by:
Providing information about Crohn’s and Colitis.
Listening and talking through your situation.
Helping you to find support from others in the Crohn’s and Colitis community.
Signposting you to specialist organisations.
Please be aware we’re not medically or legally trained. We cannot provide detailed financial or benefits advice or specialist emotional support.
Please contact us via telephone, email or LiveChat - 9am to 5pm, Monday to Friday (except English bank holidays).
If you need specific medical advice about your condition, your GP or IBD team will be best placed to help.
Would you like to save the changes made to this page?
Your details were successfully saved.
