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Shaping research

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It is vital that people with Crohn’s and Colitis work in partnership with researchers on studies to make sure they meet their needs.

People participating in a meeting
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There are many ways you can help shape new or existing research studies. This can include:

  • Working with research funders to help prioritise patient needs.
  • Reviewing and working in partnership on applications for funding.
  • Joining project steering groups.
  • Participating in focus groups.
  • Completing surveys to inform the study.

Browse opportunities for you to shape Crohn’s and Colitis research below and don’t forget that you can join our Research Community or follow us on twitter, to receive all the latest opportunities!

If you're a researcher looking for support with recruiting people with Crohn's and Colitis into your study, please click here for more information

Shaping research opportunities

Development of an online decision aid for Ulcerative Colitis treatment options

Researchers at University of Sheffield want feedback from people living with Colitis about a new decision aid they are developing to help with making choices about treatment.

Feedback on future research - gut microbiome rhythms

Researchers at University of Manchester would like people living with IBD to give feedback on the design of a future research study about gut microbiome rhythms.

Fibrosis (scarring) activity in Crohn's Disease

Researchers at University of Edinburgh are looking for people living with Crohn's and experience of fibrosis to share their lived experience to help shape future research. 

Identifying the most important future research questions: A perianal Crohn's Disease research survey

Researchers at St Mark's, Fistula Research Unit, are looking for people to complete a short survey about perianal Crohn's Disease. This will help them to shape future research

Focus group - understanding thoughts, beliefs, and preferences on treatment escalation in people who have inflammatory bowel disease.

Join a focus group to help researchers understand thoughts, beliefs, and preferences on treatment escalation in people who have inflammatory bowel disease.

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We know it can be difficult to live with, or support someone living with these conditions. But you’re not alone. We provide up-to-date, evidence-based information and can support you to live well with Crohn’s or Colitis.

Our helpline team can help by:

  • Providing information about Crohn’s and Colitis.

  • Listening and talking through your situation.

  • Helping you to find support from others in the Crohn’s and Colitis community.

  • Providing details of other specialist organisations.

Please be aware we’re not medically or legally trained. We cannot provide detailed financial or benefits advice or specialist emotional support.

Please contact us via telephone, email or LiveChat - 9am to 5pm, Monday to Friday (except English bank holidays).

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If you need specific medical advice about your condition, your GP or IBD team will be best placed to help.

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