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Shaping research

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It is vital that people with Crohn’s and Colitis work in partnership with researchers on studies to make sure they meet their needs.

People participating in a meeting
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There are many ways you can help shape new or existing research studies. This can include:

  • Working with research funders to help prioritise patient needs.
  • Reviewing and working in partnership on applications for funding.
  • Joining project steering groups.
  • Participating in focus groups.
  • Completing surveys to inform the study.

Browse opportunities for you to shape Crohn’s and Colitis research below and don’t forget that you can join our Research Community or follow us on twitter, to receive all the latest opportunities!

If you're a researcher looking for support with recruiting people with Crohn's and Colitis into your study, please click here for more information

Shaping research opportunities

How Crohn's and Colitis affect mental health

A postgraduate student from University of Hull is exploring the impact Crohn's and Colitis have on people's mental health.

Focus group on understanding the causes of Crohn's and Colitis

Researchers from the University of Newcastle are putting together a focus group to help them design a study to better understand the causes of Crohn's and Colitis

Focus group on Biological or Small Molecule Therapies

Researchers from University of Leicester are putting together a focus group made up of people who are already on Biological or Small Molecule therapies.

How does IBD impact transgender and gender non-conforming people?

St George's University Hospital want to create a survey on the experience of individuals living with Crohn's and Colitis, who identify as transgender or gender non-conforming.

Why do people stop taking IBD medication?

Researchers are looking for adults living with Crohn's or Colitis to take part in a focus group on why people stop taking prescribed medication for Crohn's or Colitis.

Picturing IBD Fatigue: understanding fatigue in young people living with IBD

Researchers at the University of Gloucestershire are looking for young people aged 16-25 to participate in an advisory group.

Support university courses using your lived experience of Crohn's or Colitis

Health Sciences staff at London Metropolitan University are looking for people with lived experience of Crohn's and Colitis to join their BeSpoke Group.

Addressing food-related quality of life in adults with Inflammatory Bowel Disease

Researchers at the University of Lincoln are looking for people to participate in a steering group looking into food-related quality of life in adults with IBD.

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We know it can be difficult to live with, or support someone living with these conditions. But you’re not alone. We provide up-to-date, evidence-based information and can support you to live well with Crohn’s or Colitis.

Our helpline team can help by:

  • Providing information about Crohn’s and Colitis.

  • Listening and talking through your situation.

  • Helping you to find support from others in the Crohn’s and Colitis community.

  • Signposting you to specialist organisations.

Please be aware we’re not medically or legally trained. We cannot provide detailed financial or benefits advice or specialist emotional support.

Please contact us via telephone, email or LiveChat - 9am to 5pm, Monday to Friday (except English bank holidays).

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If you need specific medical advice about your condition, your GP or IBD team will be best placed to help.

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