Researchers at the University of Edinburgh are looking for people with lived experience of Crohn's with fibrostenotic disease to take part in a patient engagement group. This will involve sharing your lived experience to help shape future research.
Researchers at the University of Edinburgh are looking for people with Crohn's and lived experience of fibrosis to take part in patient engagement activity to help shape future research.
The research is looking to identify fibrosis activity in patients with Crohn's and track fibrosis activity progression in Crohn's. The purpose is to improve the understanding of the pattern and timing of fibrosis, and may be able to identify early fibrosis and develop future therapies that target fibrosis. The researchers want to engage with people with lived experience to learn more about fibrosis and strictures.
The opportunity will be virtual and you will be asked to share your lived experience with the researcher, this will be used to develop future research studies. If you would like more information, please complete the form below.
By entering your details, you are not committing to take part, but your contact details will be forwarded to the researcher who will get in touch with you directly with more information. You will have the opportunity to change your mind at any time.
This research study is NOT organised by Crohn's & Colitis UK and, therefore, we cannot take responsibility for your involvement in the research.
Opportunity posted 16 December 2024
The best quality research happens when people with Crohn's and Colitis are involved, and you can make a difference at every stage of research.
This page has been saved in your personal space. Go to “My Page” to view all saved pages.
We know it can be difficult to live with, or support someone living with these conditions. But you’re not alone. We provide up-to-date, evidence-based information and can support you to live well with Crohn’s or Colitis.
Our helpline team can help by:
Providing information about Crohn’s and Colitis.
Listening and talking through your situation.
Helping you to find support from others in the Crohn’s and Colitis community.
Providing details of other specialist organisations.
Please be aware we’re not medically or legally trained. We cannot provide detailed financial or benefits advice or specialist emotional support.
Please contact us via telephone, email or LiveChat - 9am to 5pm, Monday to Friday (except English bank holidays).
If you need specific medical advice about your condition, your GP or IBD team will be best placed to help.
Would you like to save the changes made to this page?
Your details were successfully saved.
