Helpline Need to talk, need support? What is our helpline for?
0300 222 5700 Email
Make a donation Become a member
Make a donation
Become a member

Patient Involvement in Research Day 2023

This year's Patient Involvement in Research Day took place on Saturday 11th November 2023 on Zoom. 

Over 100 people joined us throughout the morning to listen to talks from researchers and to take part in live polls to help shape their current and future research.

It's so important that people living with IBD are involved in research at every step, as it ensures the outcomes of the research meet our community's needs, and participants have helped to shape several exciting projects.

Print Save to My Page

If you couldn't join us on the day, or simply want to watch some of the talks again, you can watch the recording below. 

Time guide

0:00 - 03:45

Welcome - Ruth Wakeman, Director of Services, Advocacy & Evidence and Jackie Craissati, Chair of Crohn's & Colitis UK

03:46 - 29:18

Keynote talk - Professor Charlie Lees 

29:19 - 55:58

A combined patient-researcher approach towards improving wellbeing in IBD - Dr Rebecca Hall & Molly Halligan

55:59 - 1:12:19

Patient Understanding of IBD and the ADVANTAGE project - Professor Amanda C de C Williams

1:12:20 - 1:25:22

Exploring the roles of Self-Compassion, Illness Perceptions and Coping Strategies in IBD - James Guerin

1:40:00 - 1:59:07

AWARE-IBD - Elena Sheldon & Samantha McCormick

1:59:11 - 2:15:38

ASSIST-IBD (A Self-led Self-management Intervention Supporting Teens with IBD) - Cassie Screti

2:15:39 - 2:26:55

IBD-BOOST programme grant results update - Professor Christine Norton

2:26:56 - 2:33:32

MaSH-IBD Study (Male sexual health in IBD) results update - Sara Ma

2:33:33 - 2:51:52

Understanding mechanisms of chronic pain in patients with IBD - Dr Ebad Ul Haq & Dr Ruqaya Idrees

2:51:53 - 3:02:40

Picturing IBD Fatigue - Suzy MacDonagh

3:02:41 - 3:03:53

Closing remarks - Ruth Wakeman, Director of Services, Advocacy & Evidence

Blood Samples

Meet the Presenters

 Crohn's and Colitis research

Download the Agenda

 Speech bubble with question mark

Q&A from the day

If you have any questions about this event, please contact researchinvolvement@crohnsandcolitis.org.uk 

Patient Involvement in Research Day 2022

Patient Involvement in Research Day 2021

Want to look at other ways to get involved in research?

The best quality research happens when people with Crohn's and Colitis are involved, and you can make a difference at every stage of research.

Want to get involved in research?
Want to get involved in research?

Page
saved

This page has been saved in your personal space. Go to “My Page” to view all saved pages.

Go to My Page Close
Helpline service

Helpline
Service

We know it can be difficult to live with, or support someone living with these conditions. But you’re not alone. We provide up-to-date, evidence-based information and can support you to live well with Crohn’s or Colitis.

Our helpline team can help by:

  • Providing information about Crohn’s and Colitis.

  • Listening and talking through your situation.

  • Helping you to find support from others in the Crohn’s and Colitis community.

  • Signposting you to specialist organisations.

Please be aware we’re not medically or legally trained. We cannot provide detailed financial or benefits advice or specialist emotional support.

Please contact us via telephone, email or LiveChat - 9am to 5pm, Monday to Friday (except English bank holidays).

Live chat

If you need specific medical advice about your condition, your GP or IBD team will be best placed to help.

Would you like to save the changes made to this page?