Ziyad has been living with Crohn’s since 2007. For the past six years he has volunteered with Crohn’s & Colitis UK, first as an Awareness Volunteer and now as an Information Feedback Volunteer.
What I enjoy the most about volunteering is the chance to make a tangible difference in people's lives. I've always been intrigued by the patient experience, especially meeting those with similar and vastly different experiences to my own.
Whether it's through sharing my own story to let others know they're not alone or by helping to refine information so it's easily digestible (pun not intended), every contribution feels like a step towards a more supportive and understanding community.
Ziyad
Information Feedback Volunteer
Among the various projects I've participated in, In My Shoes and the Talking Toolkit hold a special place for me. These initiatives offered a unique glimpse into the daily reality of living with IBD, which can be really hard to explain to those who do not have it. These campaigns provided invaluable resources for individuals like me to navigate conversations about our conditions with confidence - a skill I once struggled with immensely.
Our Information Feedback Volunteers help produce our award-winning information. They provide feedback on drafts of our upcoming webpages, videos and infographics. Information Feedback Volunteers are a key part of our information production process and help make sure our information is relevant and easy to understand.
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We know it can be difficult to live with, or support someone living with these conditions. But you’re not alone. We provide up-to-date, evidence-based information and can support you to live well with Crohn’s or Colitis.
Our helpline team can help by:
Providing information about Crohn’s and Colitis.
Listening and talking through your situation.
Helping you to find support from others in the Crohn’s and Colitis community.
Providing details of other specialist organisations.
Please be aware we’re not medically or legally trained. We cannot provide detailed financial or benefits advice or specialist emotional support.
Please contact us via telephone, email or LiveChat - 9am to 5pm, Monday to Friday (except English bank holidays).
If you need specific medical advice about your condition, your GP or IBD team will be best placed to help.
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