Whether you’re a young person with Crohn’s or Colitis or someone wanting to support them, we're here to help.
We have information for:
You can also find a list of useful resources from other organisations.
Our storybook and video help to explain Crohn’s and Colitis in a way that’s easy to understand.
If you’re a teenager, you might be feeling nervous about moving to adult care. We explain what’s involved and how you can get ready for the change.
Meet The Unstoppables – young people living with Crohn’s and Colitis who want to share their stories with you!
Our young person films highlight the challenges young people face and how they cope with issues relating to their disease.
Crohn's & Colitis UK funded researchers worked with young people to create information and tips on how to tell your friends about your condition.
Watch our video that's been made by young people, giving you some tips on how to tell your friends you have Crohn's or Colitis.
If your child has Crohn’s or Colitis, find out how you can support them, what you can do to help and what we can do to support you.
This guide takes you step-by-step through the process of making a claim for Disability Living Allowance (DLA).
Read our leaflet to help educators and other staff best support students with Crohn's or Colitis.
Read some of our tips and advice from students with Crohn's or Colitis on what to do when you go to university.
22-year-old student, Ellie, shares her top tips for managing IBD when starting college or university.
Billie was diagnosed with Colitis during her second year of university. This is her student success story in her own words.
Coping with Crohn's or Colitis need not make your time in higher education any less fun than it is for other students. Read about Ellie’s journey through university.
Meet Lizzie and find out her thoughts and feelings about starting university after being diagnosed with Crohn's Disease.
If you're going away to uni, we’ve got the words to help you break the ice about your condition.
Meet Hakeem, who candidly discusses his journey of coming to terms with his diagnosis and navigating university with his condition.
Meet Leanne-Sydonie, who made the difficult decision to put her studies on hold and focus on her health.
Meet Jess, a student who reflects on how her Crohn's impacted her mental health, leading her to feel isolated and alone.
For young people (CICRA) - CIRCA produce information and support for children and young people with Crohn’s and Colitis and their families.
Disability Rights UK - Find factsheets and guides on further and higher education, including what counts as a disability (some students with Crohn's or Colitis may be considered disabled under the Equality Act 2010) and adjustments and additional funding for disabled students. You can also get information from their Disabled Students Helpline (11am-1pm on Tuesdays and Thursdays) - call 0330 995 0414 or email students@disabilityrightsuk.org.
For primary and schools (CICRA) - CICRA produce a guide for primary schools, a guide for secondary schools and a quick guide for teachers with information on how the conditions may affect young people at school and how schools can fulfill their responsibilities to support children with Crohn's and Colitis.
Schools information for parents/carers of disabled children (Contact) - Contact is a charity providing support for families with disabled children. They provide information about education and school life, including attendance, absence, medical needs and transport.
Information on starting and going to school (ERIC) - ERIC is the national charity dedicated to improving children’s bowel and bladder health. Find out about managing continence challenges at school and college.
Support for children with special educational needs (IPSEA) - The Independent Provider of Special Education Advice have general advice about supporting children with special educational needs or disability. They offer free and independent information, advice and support to help get the right education for children and young people with special educational needs and disabilities (SEND).
Information on benefits, grants and financial support (Turn2us) - Turn2us are a national charity that help people access welfare benefits, charitable grants, and support services, including financial help for students.
Visit all our information to find out more about Crohn's and Colitis, including symptoms, treatments and practical tips for living with Crohn's and Colitis.
We offer people affected by Crohn's or Colitis the chance to join a virtual social event with others across the UK. The events will be a chance to chat, share experiences and potentially learn from others. Family, friends and colleagues are more than welcome to attend.
Please note that these events are:
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We know it can be difficult to live with, or support someone living with these conditions. But you’re not alone. We provide up-to-date, evidence-based information and can support you to live well with Crohn’s or Colitis.
Our helpline team can help by:
Providing information about Crohn’s and Colitis.
Listening and talking through your situation.
Helping you to find support from others in the Crohn’s and Colitis community.
Signposting you to specialist organisations.
Please be aware we’re not medically or legally trained. We cannot provide detailed financial or benefits advice or specialist emotional support.
Please contact us via telephone, email or LiveChat - 9am to 5pm, Monday to Friday (except English bank holidays).
If you need specific medical advice about your condition, your GP or IBD team will be best placed to help.
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