Helpline
Need to talk, need support? What is our helpline for?
New assessment tool is being developed for recording incontinence, which should help people with IBD.
We propose to develop a new bowel continence questionnaire which will provide the first tool for accurately assessing the person’s perceptions of their bowel symptoms in IBD, as well as the emotional impact and effect on the quality of life.
Ms Lesley Dibley, Buckingham New University, High Wycombe
A previous grant from Crohn's and Colitis UK allowed researchers to test the International Consultation on Incontinence Questionnaire – Bowels (ICIQ-B) to see whether it was suitable for people with IBD. ICIQ-B is aimed at assessing faecal incontinence in the general population, so researchers wanted to know whether it is suitable for people with IBD. They found that it was not suitable for IBD patients, mainly because it not take into account the changeable nature of IBD. It also did not take into account some IBD specific issues – such as odour, noise, wind and pain.
Being able to accurately record and measure the impact of faecal incontinence is important because it can help doctors and nurses better understand and meet patient's needs.
The researchers now want to go on to develop a new bowel continence questionnaire which will be specific to patients with IBD. As well as measuring bowel symptoms, it will also measure the emotion impact of faecal incontinence, and its effect on quality of life.
This grant will fund consultation on, then development of, the new questionnaire. It is hoped this questionnaire will be adopted and recognised internationally as a tool for use among IBD medical practitioners.
Conclusions:
This is an ongoing study with no conclusions as yet.
Faecal incontinence is a very distressing symptom of IBD. If the researchers can produce a IBD-specific continence questionnaire, then patients will be able to accurately record and report their bowel symptoms, which will then help healthcare professionals to assist and support patients. It will also be useful in helping people describe symptoms which are otherwise too difficult to explain.
Who's leading the research: Ms Lesley Dibley, Buckingham New University, High Wycombe
Our funding: £26,718 over 12 months
Official title of the application: “Adaptation of the ICIQ-B questionnaire for assessing incontinence, quality of life and psychosocial impact in people with IBD.”
Tags: incontinence
This page has been saved in your personal space. Go to “My Page” to view all saved pages.
We know it can be difficult to live with, or support someone living with these conditions. But you’re not alone. We provide up-to-date, evidence-based information and can support you to live well with Crohn’s or Colitis.
Our helpline team can help by:
Providing information about Crohn’s and Colitis.
Listening and talking through your situation.
Helping you to find support from others in the Crohn’s and Colitis community.
Providing details of other specialist organisations.
Please be aware we’re not medically or legally trained. We cannot provide detailed financial or benefits advice or specialist emotional support.
Please contact us via telephone, email or LiveChat - 9am to 5pm, Monday to Friday (except English bank holidays).
If you need specific medical advice about your condition, your GP or IBD team will be best placed to help.
Would you like to save the changes made to this page?
Your details were successfully saved.
Get involved in research
