Want to get involved in research?
The best quality research happens when people with Crohn's and Colitis are involved, and you can make a difference at every stage of research.
We hear from thousands of people every month so we know we can tell powerful stories about your lives and what needs to change, backed by facts and statistics. But we also know that we are not reaching every part of our community so cannot reflect the full range of experiences. We are making it our mission to fully understand your experience so we can fight for everyone affected by Crohn’s and Colitis.
The evidence and insight programme will identify gaps in the current knowledge of Crohn’s and Colitis and address them. Our aim is to understand the experiences of all those affected by Crohn’s and Colitis, including those from underserved groups.
By ‘evidence’ we mean facts and information drawn from research, data analysis and evaluation. ‘Insight’ is where evidence is applied in real-life situations to gain more knowledge from people’s lived experiences.
Currently we are funding research to strengthen our evidence and insight into areas such as:
By actively expanding our evidence and insight base, we are leading what is known about Crohn’s and Colitis in the UK.
Crohn's & Colitis UK have commissioned an evidence review to develop an understanding of where and why diagnostic delays occur in Crohn’s and Colitis and to gain insights from how delays in diagnosis have been tackled in other comparative diseases which might help to address diagnostic delay issues in IBD.
The full report and an executive summary document are available to download below.
We know it can be difficult to live with, or support someone living with these conditions. But you’re not alone. We provide up-to-date, evidence-based information and can support you to live well with Crohn’s or Colitis.
Our helpline team can provide information on a range of subjects including:
Please contact us via telephone, email or LiveChat - 9am to 5pm, Monday to Friday (except English bank holidays).
If you need specific medical advice about your condition, your GP or IBD team will be best placed to help.