Currently we are funding research to strengthen our evidence and insight into areas such as:

• Who lives with Crohn’s and Colitis in the UK – As you may already know, in 2022 we received the results from a study we commissioned that showed the number of people living with Crohn’s Disease or Ulcerative Colitis in the UK has been vastly underestimated. Read more here. Next, we need to explore in more depth how Crohn’s and Colitis is shaped by factors such as age, gender, ethnicity, location and socioeconomic factors. This work will deepen our understanding of different lived experiences of Crohn’s and Colitis across the UK and lay the foundations for our future work.
• Understanding diagnostic delays in Crohn’s and Colitis: an evidence review – Crohn's & Colitis UK have commissioned an evidence review to develop an understanding of where and why diagnostic delays occur in Crohn’s and Colitis and to gain insights from how delays in diagnosis have been tackled in other comparative diseases which might help to address diagnostic delay issues in IBD. Click the following links for the full report and an executive summary.
• The cost of IBD – We want to know the true cost of IBD to individuals, the NHS and wider society. This project will examine if delays in diagnosis of IBD impacts the costs and the mechanisms behind this.
• The language of poo – People tend to get very embarrassed when speaking about their bowel movements. It is not something that is part of usual everyday conversation and something people still view as a taboo. We captured insights from a range of people to understand how they talk about poo, pee, and toilets. We were especially interested in understanding the type of language people from different cultures, genders and ages use when discussing bowel movements. You can read more about the findings here or view the executive summary of the report here.
• Improving diversity in research – We’ve recently partnered with ClearView Research to gather evidence that will help us better understand the barriers members of the Black community face when getting involved with research.  You can now read the findings of the report and how we're going to be using this to implement change.
• Which social and economic factors have the biggest impact? We are funding two projects, one in collaboration with the community engagement agency Egality and the other with the University of Hertfordshire. These projects aim to explore which social and economic factors significantly impact people living with Crohn's and Colitis in the UK. In particular, we are engaging with people from diverse ethnic and socioeconomic backgrounds who are often under-represented in research. The Egality study has been completed, and you can find a summary report of their findings here. The University of Hertfordshire's study is still in progress, and we anticipate that the combined insights from both projects will provide a nuanced perspective on the challenges faced by individuals with these conditions.
• Study on quality-of-life and the Top Ten Impacts of living with Crohn's and Colitis - We commissioned a study with Common Collective to understand of how Crohn’s and Colitis currently affect the lives of people living with the conditions. The study identified ten priority areas most impacted by living with Crohn’s and Colitis in the UK. Click here for more information. We have now launched a new survey to deepen our understanding of the Top Ten impacts: Click here to fill out the survey. For more information on the survey, click here.
• The Impact of Social and Economic Factors on Outcomes within People Living with Crohn’s and Colitis in the UK: A Scoping Review - This scoping review investigated how social and economic factors affect individuals living with Crohn’s and Colitis in the UK. It aimed to systematically map the existing evidence, summarise key findings, identify areas for further review, and propose future research directions to better understand the differential impacts of these conditions on various affected groups. Click here for more information.

By actively expanding our evidence and insight base, we are leading what is known about Crohn’s and Colitis in the UK.