Campaigning and community

Group of IBD Nurse Specialists chatting.

The RCN IBD Network supports IBD nurses across the UK, helping to develop nurses, promote and maintain high standards for care for patients. The network provides a national voice for IBD nurses within the RCN, and with other networks and stakeholders.

Crohn’s & Colitis UK also use this platform alongside our Healthcare Professional Community to promote campaigns relevant to IBD Nurses and other Healthcare Professionals.

Group of IBD Nurse Specialists chatting.

Get connected with other IBD Nurses and find out about Crohn's & Colitis UK campaigns.

RCN Community

Active regional groups meet across the UK. These are great chance to meet other like-minded nurses to network and to share educational opportunities, audit, research, and disseminate best practice.

Sign up through the RCN Gastrointestinal Forum, or join the Facebook group.

Crohn’s & Colitis UK Healthcare Professional Community

Sign up to be a part of our Healthcare Professional community and receive the latest news and updates. 

We aim to bring you a range of charity updates, opportunities to get involved, industry updates, the latest research, sharing of best practice, and the opportunity to feed in insight to us.

Current campaigns

As advocacy is a big part of the role of an IBD Nurse Specialist, Crohn’s & Colitis UK want to work with you to help end stigma and improve care for people living with Crohn's and Colitis. 

Accessible toilets campaign

Girl and man with accessible toilets sign

We have been fighting to end the stigma for people with Crohn's and Colitis using accessible public toilets. A major worry for people living with an “invisible disability” such as Crohn’s Disease or Ulcerative Colitis is being refused access to or confronted for using accessible toilets.

Our accessible toilets campaign has already seen several major supermarkets installing our “Not every disability is visible” signs on their accessible facilities, but we’re not stopping here.

Join our campaign to raise even more awareness for invisible disabilities and help end the stigma for good.

Learn more about the campaign here

Want to receive the latest news and updates?

Keep in touch with us a receive news, updates and opportunities to get involved for healthcare professionals.


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Helpline service


We know it can be difficult to live with, or support someone living with these conditions. But you’re not alone. We provide up-to-date, evidence-based information and can support you to live well with Crohn’s or Colitis.

Our helpline team can help by:

  • Providing information about Crohn’s and Colitis.

  • Listening and talking through your situation.

  • Helping you to find support from others in the Crohn’s and Colitis community.

  • Signposting you to specialist organisations.

Please be aware we’re not medically or legally trained. We cannot provide detailed financial or benefits advice or specialist emotional support.

Please contact us via telephone, email or LiveChat - 9am to 5pm, Monday to Friday (except English bank holidays).

Live chat

If you need specific medical advice about your condition, your GP or IBD team will be best placed to help.

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