Useful Resources & References

The resources provided on this page are intended to support those that have attended the free Crohn’s & Colitis UK Advice Line Training.

Useful Documents


  • Anderson, G & Marsden, E (2012) Audit of an inflammatory bowel disease (IBD) telephone helpline set up and manged by IBD specialist nurses. Gastrointestinal Nursing. 10 (5), 24- 29.
  • Beck, Shaw, Rush and Emery. Cognitive Therapy of Depression (Guildford Press)
  • Benner, P. (1982) 'From novice to expert', American Journal of Nursing, Mar, pp.402-7.
  • Care Quality Commission (2013) Supporting information and guidance: Supporting effective clinical supervision.
  • Cooper, N., Forrest, K., Cramp, P. (2006) Essential Guide to Generic Skills.  Oxford: Blackwell publishing.
  • Department of Health (2015) NHS complaints guidance
  • Greenberg, M.E. (2009) A comprehensive model of the process of telephone nursing.  J Adv Nurse 65(12): 2621-8.
  • Halberstam, M. J. (1977) Medicine by telephone: is it brave, foolhardy, or just inescapable? Mo Med, 15: 11-5.
  • Harvey, R, Bradshaw, J (1980) A simple index of Crohn’s disease activity.  Lancet. 315 (8167): 514
  • HSJ Value of IBD nurse specialists
  • IBD Standards/IBDUK Website
  • Kapasi R, Glatter J, Lamb CA, et al Consensus standards of healthcare for adults and children with inflammatory bowel disease in the UK Frontline Gastroenterology Published Online First: 24 July 2019. doi: 10.1136/flgastro-2019-101260
  • Kemp, K, Dibley, L, Chauhan, U, Greveson, K, Jaghult, S, Ashton, K Buckton, S, Duncan, J, Hartmann, P, Ipenburg,N, Moortgat, L, Theeuwen, R, Verwey, M, Younge, L, Sturm, A and Bager, P (2018) Second N-ECCO Consensus Statements on the European Nursing Roles in Caring for Patients with Crohn’s Disease or Ulcerative Colitis. Journal of Crohn’s and Colitis. 12, 7, 760-776. doi10.1093/ecco-jcc/jjy020.
  • Kennedy NA, Hansen R, Younge L, et al Organisational changes and challenges for inflammatory bowel disease services in the UK during the COVID-19 pandemic Frontline Gastroenterology 2020;11:343-350.
  • Lamb CA, Kennedy NA, Raine T, et al. British Society of Gastroenterology consensus guidelines on the management of inflammatory bowel disease in adults. Gut. 2019;68(Suppl 3):s1–s106. doi:10.1136/gutjnl-2019-318484
  • Lazare, A, Putman S, M, Lipkin, M (1995) Three functions of the medical interview. In Lipkin M Jr, Putnam, S, M, Lazare, A eds. The Medical Interview. Clinical Care, Education and research. London: Springer: 3-17.
  • Leary A (2011) ‘Proving Your Worth’, Nursing Standard; April 6; Vol 25; No 31, p 62-66
  • Leary, A, Punshon, G and Mason, I (2018). Modelling the Inflammatory Bowel Disease Specialist Nurse Workforce standards by determination of optimum caseloads in the United Kingdom. Journal of Crohn's and Colitis.
  • Lovén Wickman, Ulrica MScN, RN; Yngman-Uhlin, Pia PhD, RN; Hjortswang, Henrik PhD, MD; Riegel, Barbara DNSc, RN, FAAN, FAHA; Stjernman, Henrik PhD, MD; Hollman Frisman, Gunilla PhD, RN Self-Care Among Patients With Inflammatory Bowel Disease, Gastroenterology Nursing: March/April 2016 - Volume 39 - Issue 2 - p 121-128
  • NMC Standards for competence for registered nurses
  • NMC The Code 
  • O’Connor, M (2011) Criteria for success using an inflammatory bowel disease nurse telephone service.  Gastrointestinal Nursing.  9, 2, 36- 42.
  • Plevinsky JM, Greenley RN, Fishman LN. Self-management in patients with inflammatory bowel disease: strategies, outcomes, and integration into clinical care. Clin Exp Gastroenterol. 2016;9:259–267. Published 2016 Aug 23. doi:10.2147/CEG.S106302
  • Reisman, A & Stevens, D (2002) Telephone Medicine. A guide for the practicing physician. Philadelphia, Pennsylvania: American college of physicians.
  • Royal College of Nursing (2006) Telephone advice lines for people with long term conditions.  Guidance for nursing practitioners.  RCN: London. ARCHIVED
  • Royal College of Nursing (2012) Using telephone advice for patients with long-term conditions. RCN: London
  • Samaritans DEAL developing listening skills
  • Walmsley, R, Ayres, R, Pounder, R, Allen, R (1980) A simple clinical colitis activity index. Gut. 43: 29-32.
  • Worden, WJ. Grief Counselling and Grief Therapy (Routledge)
  • Younge, L, Sufi, H,  and Dibley, L. Regular clinical supervision to enhance wellbeing in inflammatory bowel disease specialist nurses: a small pilot study Gastrointestinal Nursing 2020 18:3, 36-42
  • Younge L, Mason I, Kapasi R (2019) Specialist inflammatory bowel disease nursing in the UK: current situation and future proofing. Frontline Gastroenterology Epub (1st April 2020). doi:10.1136/ flgastro-2019-101354 

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Helpline service


We know it can be difficult to live with, or support someone living with these conditions. But you’re not alone. We provide up-to-date, evidence-based information and can support you to live well with Crohn’s or Colitis.

Our helpline team can help by:

  • Providing information about Crohn’s and Colitis.

  • Listening and talking through your situation.

  • Helping you to find support from others in the Crohn’s and Colitis community.

  • Signposting you to specialist organisations.

Please be aware we’re not medically or legally trained. We cannot provide detailed financial or benefits advice or specialist emotional support.

Please contact us via telephone, email or LiveChat - 9am to 5pm, Monday to Friday (except English bank holidays).

If you need specific medical advice about your condition, your GP or IBD team will be best placed to help.

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