Useful Documents

• Workshop 1 Slides
• Workshop 2 Slides
• Advice Line Training Handout
• Thinking about writing or Updating your IBD Advice Line SOP?
• IBD Nurses Signposting Document
• Apollo Nursing Resource
• SBAR Communication tool
• Using e-health tools and PROMs to support self-management in patients with inflammatory bowel disease
• Development and validation of a rapid, generic measure of disease control from the patient's perspective: the IBD-Control questionnaire
• Assessing Severity of Disease in Patients with Ulcerative Colitis
• A simple clinical colitis activity index
• Samaritans Poster (registration required)

References

• Anderson, G & Marsden, E (2012) Audit of an inflammatory bowel disease (IBD) telephone helpline set up and manged by IBD specialist nurses. Gastrointestinal Nursing. 10 (5), 24- 29.
• Beck, Shaw, Rush and Emery. Cognitive Therapy of Depression (Guildford Press)
• Benner, P. (1982) 'From novice to expert', American Journal of Nursing, Mar, pp.402-7.
• Care Quality Commission (2013) Supporting information and guidance: Supporting effective clinical supervision.
• Cooper, N., Forrest, K., Cramp, P. (2006) Essential Guide to Generic Skills.  Oxford: Blackwell publishing.
• Department of Health (2015) NHS complaints guidance. 
• Greenberg, M.E. (2009) A comprehensive model of the process of telephone nursing.  J Adv Nurse 65(12): 2621-8.
• Halberstam, M. J. (1977) Medicine by telephone: is it brave, foolhardy, or just inescapable? Mo Med, 15: 11-5.
• Harvey, R, Bradshaw, J (1980) A simple index of Crohn’s disease activity.  Lancet. 315 (8167): 514
• HSJ Value of IBD nurse specialists
• IBD Standards/IBDUK Website
• Kapasi R, Glatter J, Lamb CA, et al Consensus standards of healthcare for adults and children with inflammatory bowel disease in the UK Frontline Gastroenterology Published Online First: 24 July 2019. doi: 10.1136/flgastro-2019-101260
• Kemp, K, Dibley, L, Chauhan, U, Greveson, K, Jaghult, S, Ashton, K Buckton, S, Duncan, J, Hartmann, P, Ipenburg,N, Moortgat, L, Theeuwen, R, Verwey, M, Younge, L, Sturm, A and Bager, P (2018) Second N-ECCO Consensus Statements on the European Nursing Roles in Caring for Patients with Crohn’s Disease or Ulcerative Colitis. Journal of Crohn’s and Colitis. 12, 7, 760-776. doi10.1093/ecco-jcc/jjy020.
• Kennedy NA, Hansen R, Younge L, et al Organisational changes and challenges for inflammatory bowel disease services in the UK during the COVID-19 pandemic Frontline Gastroenterology 2020;11:343-350.
• Lamb CA, Kennedy NA, Raine T, et al. British Society of Gastroenterology consensus guidelines on the management of inflammatory bowel disease in adults. Gut. 2019;68(Suppl 3):s1–s106. doi:10.1136/gutjnl-2019-318484
• Lazare, A, Putman S, M, Lipkin, M (1995) Three functions of the medical interview. In Lipkin M Jr, Putnam, S, M, Lazare, A eds. The Medical Interview. Clinical Care, Education and research. London: Springer: 3-17.
• Leary A (2011) ‘Proving Your Worth’, Nursing Standard; April 6; Vol 25; No 31, p 62-66
• Leary, A, Punshon, G and Mason, I (2018). Modelling the Inflammatory Bowel Disease Specialist Nurse Workforce standards by determination of optimum caseloads in the United Kingdom. Journal of Crohn's and Colitis.
• Lovén Wickman, Ulrica MScN, RN; Yngman-Uhlin, Pia PhD, RN; Hjortswang, Henrik PhD, MD; Riegel, Barbara DNSc, RN, FAAN, FAHA; Stjernman, Henrik PhD, MD; Hollman Frisman, Gunilla PhD, RN Self-Care Among Patients With Inflammatory Bowel Disease, Gastroenterology Nursing: March/April 2016 - Volume 39 - Issue 2 - p 121-128
• NMC Standards for competence for registered nurses. 
• NMC The Code 
• O’Connor, M (2011) Criteria for success using an inflammatory bowel disease nurse telephone service.  Gastrointestinal Nursing.  9, 2, 36- 42.
• Plevinsky JM, Greenley RN, Fishman LN. Self-management in patients with inflammatory bowel disease: strategies, outcomes, and integration into clinical care. Clin Exp Gastroenterol. 2016;9:259–267. Published 2016 Aug 23. doi:10.2147/CEG.S106302
• Reisman, A & Stevens, D (2002) Telephone Medicine. A guide for the practicing physician. Philadelphia, Pennsylvania: American college of physicians.
• Royal College of Nursing (2006) Telephone advice lines for people with long term conditions.  Guidance for nursing practitioners.  RCN: London. ARCHIVED
• Royal College of Nursing (2012) Using telephone advice for patients with long-term conditions. RCN: London
• Samaritans DEAL developing listening skills
• Walmsley, R, Ayres, R, Pounder, R, Allen, R (1980) A simple clinical colitis activity index. Gut. 43: 29-32.
• Worden, WJ. Grief Counselling and Grief Therapy (Routledge)
• Younge, L, Sufi, H,  and Dibley, L. Regular clinical supervision to enhance wellbeing in inflammatory bowel disease specialist nurses: a small pilot study Gastrointestinal Nursing 2020 18:3, 36-42
• Younge L, Mason I, Kapasi R (2019) Specialist inflammatory bowel disease nursing in the UK: current situation and future proofing. Frontline Gastroenterology Epub (1st April 2020). doi:10.1136/ flgastro-2019-101354