We respond to proposals and consultations from policymakers and governments on a wide range of issues that affect people living with Crohn’s and Colitis across the UK. From health to employment, and from to benefits to access to toilets. We also collaborate with other organisations so that we can have a greater impact.
Our submissions have been successful in securing changes in policy, improving access to drug treatments and pushing IBD higher up the political agenda.
We use your experiences and the most up-to-date evidence to argue the case for changes to services, policy, and law to help people with Crohn’s and Colitis to live their life to the fullest. We encourage and support you to share your experiences so that policymakers consider the broadest range of perspectives.
Listening to, understanding and acting on the experiences of people with Crohn’s and Colitis is essential to good policy-making. Your accounts of how these conditions impact your life inspire action. This is why we want to work with you to better understand what needs to change, and make those changes happen
Burcu Borysik
Head of Policy and Campaigns
You can read our responses to past consultations across a range of topics below:
Homecare Medicines Services, House of Lords Public Services Committee (June 2023)
Supporting people with chronic conditions, Senedd Health and Social Care Committee (May 2023)
Endoscopy Services: follow up inquiry, Senedd Health and Social Care Committee (December 2022)
Mental Health and Wellbeing Strategy, Scottish Government (September 2022)
Impact of the waiting times backlog, Senedd Health and Social Care Committee (January 2022)
NHS Backlogs and Waiting Times: Public Accounts Committee Inquiry (September 2021)
Women's Health Strategy for England, Department of Health and Social Care (June 2021)
Accessible transport: legal obligations, Transport Select Committee (March 2023)
Taxi and private vehicle hire, Department for Transport (June 2022)
Mobility as a Service Code of Practice, Department for Transport (February 2022)
Adult Disability Payment Mobility Consultation, Scottish Government (April 2023)
Work and Pensions Committee Inquiry into disability employment (March 2024)
Changing Places Toilet Provision, Welsh Government (May 2021)
None of our award-winning campaigns would be possible without our amazing community of dedicated campaigners. Your powerful voice really does matter.
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We know it can be difficult to live with, or support someone living with these conditions. But you’re not alone. We provide up-to-date, evidence-based information and can support you to live well with Crohn’s or Colitis.
Our helpline team can help by:
Providing information about Crohn’s and Colitis.
Listening and talking through your situation.
Helping you to find support from others in the Crohn’s and Colitis community.
Providing details of other specialist organisations.
Please be aware we’re not medically or legally trained. We cannot provide detailed financial or benefits advice or specialist emotional support.
Please contact us via telephone, email or LiveChat - 9am to 5pm, Monday to Friday (except English bank holidays).
If you need specific medical advice about your condition, your GP or IBD team will be best placed to help.
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