It's World Toilet Day (19th November 2024)! We know how important toilet access is to our community.

We hear stories every day from people with Crohn's and Colitis about the challenges they have experienced when accessing toilets, so we're working hard to make sure your voices are heard. In our latest research to identify the top 10 areas of people's lives most impacted by living with Crohn's and Colitis in the UK, toilet access features as one of the top three issues that matter the most to you. Anxiety about accessing toilets and having to plan ahead and strategise for activities and events were also highlighted. Here's a snapshot of what we've been up to over the past few months in advocating for better toilet provision across the UK.


Joining forces in London

London is in desperate need of better toilet provision to improve the quality of life for the capital's residents and visitors. That's why we're pleased to announce we have joined the London Loo Alliance, a coalition of organisations calling for improvements to toilet provision in the capital. We know that 9 in 10 people with Crohn's or Colitis plan their activities based on toilet access. It is challenging, stressful and isolating if public and accessible toilets are not available. 


There are 70,000 Londoners living with a diagnosis of Crohn's or Colitis. If you need the loo urgently and often, then worrying about where to find an accessible toilet is the difference between going out to enjoy everything the capital has to offer and staying at home. Adequate toilet provision is a matter of public health and should be a priority for those in power, to ensure that London is an accessible and welcoming city for residents and visitors alike.


Fern Howard, Interim Director of Services, Advocacy and Evidence


We were also recently invited to attend the launch of TfL's plan to improve toilet provision across London's transport network. While we welcome the planned improvements, it is vital that more is done to ensure people living with Crohn's and Colitis can feel confident and comfortable while travelling on public transport.


Wales roundtable

Earlier this month we met with local councils and organisations campaigning for better access to public toilets across Wales. We heard how important access to toilets is for people across society and the need for resources to be protected. The importance of changing attitudes around toilets and the differences that sign like 'Not Every Disability is Visible' can make was welcomed. The need for greater awareness of Community Toilet Schemes and better information about where toilets are available was also highlighted.

We are excited to continue this work and raise awareness of this important issue with Welsh Government and councils to ensure that services are protected.


How to get involved

We know that toilet closures are a big concern for people with Crohn's and Colitis across the country. If toilet closures are happening in your area and you want to take action, you can email us at campaigns@crohnsandcolitis.org.uk and we will share our template letter with you to contact your council.


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We know it can be difficult to live with, or support someone living with these conditions. But you’re not alone. We provide up-to-date, evidence-based information and can support you to live well with Crohn’s or Colitis.

Our helpline team can help by:

  • Providing information about Crohn’s and Colitis.

  • Listening and talking through your situation.

  • Helping you to find support from others in the Crohn’s and Colitis community.

  • Providing details of other specialist organisations.

Please be aware we’re not medically or legally trained. We cannot provide detailed financial or benefits advice or specialist emotional support.

Please contact us via telephone, email or LiveChat - 9am to 5pm, Monday to Friday (except English bank holidays).

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If you need specific medical advice about your condition, your GP or IBD team will be best placed to help.

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