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Survey: Your experiences of living with Inflammatory Bowel Disease and claiming benefits

Published 07 August 2015

The Disability Benefits Consortium have put together four surveys which ask you about your experiences of claiming Personal Independence Payments or PIP, the impact of moving from Disability Living Allowance (DLA) to PIP, getting support with housing costs and claiming Employment Support Allowance.

Crohn’s and Colitis UK are part of the Disability Benefits Consortium (DBC), which is a national coalition of over 50 different charities committed to working towards a fair benefits system for disabled people and their families.

We know that those living with IBD often struggle to get the financial support they need through the benefits system. This is one of the reasons why the Disability Benefits Consortium every year conducts a “Big Benefits Survey”. This is a large benefits survey where we want to hear from you about your experiences about what is and what’s not working within the benefits system.

The evidence you provide goes a long way to help us to campaign for a fair benefits system for those living with IBD. Anyone who has supported you to apply for these benefits is welcome to fill the survey in on your behalf.

  • Are you on DLA? Have you applied for Personal Independence Payment (PIP)? We want to know what it was like to apply for this benefit. Please tell us about your experiences in this PIP survey
  • Have you moved from DLA to PIP? Has this meant the amount of money you get has changed now? Has losing DLA or getting less money made life more difficult? Please tell us about your experiences in this impact survey
  • If you are unable to work because of a long-term condition or disability then you can apply for Employment Support Allowance (ESA). Please tell us about your experiences by filling in the ESA survey
  • Do you receive help to pay your rent or mortgage (either Housing Benefit or Mortgage interest payments)? 
  • Have you had problems with the ‘bedroom tax’? Do you get enough money to help you pay your rent? Please tell us about your experiences by filling in the housing benefit survey

Last year over a thousand people completed the Big Benefits survey, and the evidence we gathered helped us to tell the Government about the impact of benefit changes and helped raise awareness of how the Bedroom Tax affects disabled people.

Disability Benefits Service


Crohn's and Colitis UK has a dedicated Disability Benefits Service, if you have any questions or would like some advice about benefits for those living with IBD then please call 01727 734470 or email info@crohnsandcolitis.org.uk

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We know it can be difficult to live with, or support someone living with these conditions. But you’re not alone. We provide up-to-date, evidence-based information and can support you to live well with Crohn’s or Colitis.

Our helpline team can help by:

  • Providing information about Crohn’s and Colitis.

  • Listening and talking through your situation.

  • Helping you to find support from others in the Crohn’s and Colitis community.

  • Providing details of other specialist organisations.

Please be aware we’re not medically or legally trained. We cannot provide detailed financial or benefits advice or specialist emotional support.

Please contact us via telephone, email or LiveChat - 9am to 5pm, Monday to Friday (except English bank holidays).

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If you need specific medical advice about your condition, your GP or IBD team will be best placed to help.

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