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Survey: Shape the future of IBD Standards

Take part in this short survey to shape and influence standards for Crohn's Disease and Ulcerative Colitis services.

The IBD Standards is a set of standards describing what a good Inflammatory Bowel Disease (IBD) Service should look like. The set of standards was last updated in 2013, and created a benchmark against which local services can measure their quality and to plan and develop their services. Five years on, the IBD Standards are being revised and will be published in early 2019. You can take part in our survey to help shape and influence the new standards, which will be used by clinical teams, NHS managers and commissioners to plan and deliver services that should be person-centred. This will ensure that people with Crohn's and Colitis have the best possible outcomes in their care; so it is extremely important that these reflect the needs and priorities of patients.The proposed new IBD Standards follow the patient journey from first symptoms to ongoing care and flare management, setting out the appropriate care that should be provided at each stage. Patients have actively been involved throughout the revision of the IBD Standard and at this stage we would like to hear your view.Take part in the IBD Standards survey.

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We know it can be difficult to live with, or support someone living with these conditions. But you’re not alone. We provide up-to-date, evidence-based information and can support you to live well with Crohn’s or Colitis.

Our helpline team can help by:

  • Providing information about Crohn’s and Colitis.

  • Listening and talking through your situation.

  • Helping you to find support from others in the Crohn’s and Colitis community.

  • Providing details of other specialist organisations.

Please be aware we’re not medically or legally trained. We cannot provide detailed financial or benefits advice or specialist emotional support.

Please contact us via telephone, email or LiveChat - 9am to 5pm, Monday to Friday (except English bank holidays).

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If you need specific medical advice about your condition, your GP or IBD team will be best placed to help.

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