This year, the CPG is focused on raising the asks of our early diagnosis campaign up the political agenda, highlighting the impact that delays to diagnosis have on people with Crohn’s and Colitis.
During the latest meeting in June, the CPG heard from Chris and Katie, whose personal, home and working lives have been deeply affected by a long and challenging journey to diagnosis.
After attending the meeting Chris said:
The chance to voice my thoughts during the CPG meeting was truly remarkable; I had the opportunity to share my personal story and engage in discussions with MSPs and specialists who shared a similar understanding of my illness and its treatment.
It proved to be an enlightening encounter, as I witnessed the tremendous effort invested by Crohn’s & Colitis UK behind the scenes, which left me deeply impressed.
Reflecting on her experience Katie added:
Speaking at the CPG about my experiences with IBD gave me the opportunity to share my diagnosis journey. It was great to hear from doctors and IBD nurses on their perspective about how diagnosis of IBD can be improved, and give over my own experiences from diagnosis to working with the IBD medical team.
Being able to chat with healthcare professionals and MSP's was beneficial to see the work being done by the Cross Party Group and see how patient stories can impact what is happening at a national level.
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