How is your hospital doing against the IBD Standards?

A huge thank you to everyone who took the time to complete the IBD Patient Survey 2023. Over 15,000 people living with Crohn’s and Colitis shared their experiences of care – an incredible response.  

We are delighted that reports based on results from the IBD Patient Survey and the complementary Service Survey, completed by your IBD team, are now live.

You can find the report for your local IBD service here: IBD UK Benchmarking local reports

These reports look at how care is being provided against the IBD Standards 2019, which say what high-quality care should look like at every point of a patient’s journey – from first symptoms, to diagnosis, treatment, and ongoing care. We encourage you to ask your IBD team if they know that the IBD UK reports are now live, and what action they are planning to take to improve your care.   

The Benchmarking was run by IBD UK, a partnership of 16 organisations working together to improve care and treatment for everyone affected by Inflammatory Bowel Disease, chaired by Crohn’s & Colitis UK. 

A national report will also be released in summer 2024. Crohn’s & Colitis UK and IBD UK will use this important data to continue campaigning for better care for people with the conditions across the UK.  

Thanks to everyone who shared their experiences, we now have the first true picture of IBD care and treatment across the country since before the COVID-19 pandemic.  

Find your local IBD UK Benchmarking report


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Helpline service


We know it can be difficult to live with, or support someone living with these conditions. But you’re not alone. We provide up-to-date, evidence-based information and can support you to live well with Crohn’s or Colitis.

Our helpline team can help by:

  • Providing information about Crohn’s and Colitis.

  • Listening and talking through your situation.

  • Helping you to find support from others in the Crohn’s and Colitis community.

  • Signposting you to specialist organisations.

Please be aware we’re not medically or legally trained. We cannot provide detailed financial or benefits advice or specialist emotional support.

Please contact us via telephone, email or LiveChat - 9am to 5pm, Monday to Friday (except English bank holidays).

Live chat

If you need specific medical advice about your condition, your GP or IBD team will be best placed to help.

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