Hope, 20, had symptoms of Crohn’s for over 2 years before she got her diagnosis, which was delayed due to COVID-19.  She has found the Crohn’s & Colitis UK community and support very helpful. 

I was diagnosed with Crohn’s in February 2021. I had been experiencing painful symptoms for over 2 years. My symptoms were mainly extreme stomach pains, hair loss, a complete loss of appetite and loads of trips to the toilet. But it was the pain that I really struggled with.  

At first, my doctor prescribed steroids to try to calm down my inflammation, which they did. But they only ever worked in the highest dosage. 

Since then, I have been on numerous different medicines. I am currently on adalimumab injections. These have calmed down most of the active inflammation and my trips to the toilet have lessened. However, for me, the side effects have been extreme fatigue and worsening stomach pains, severe constipation and nausea. 

Crohn’s & Colitis UK has been a big help for me. When I was first diagnosed, I only knew of relatives who have Crohn’s, but no one of my age or anyone who was going through the same struggle with treatments as myself.


Hope, 20, living with Crohn's

I work full-time in training at a Nursery and started this job in the same month as my diagnosis. It has been hard to adapt - I was not ready for the challenge that I would face with this condition. I find working full-time is difficult and it often makes me feel very poorly. I find it hard to get through the days right now.

I have found so many people who are going through a similar experience to me, which makes me feel less isolated. I hope to meet more people in this community and have been using social media to raise awareness – as well as to help myself feel less alone with this crazy experience! 

I have contacted the Crohn’s & Colitis UK helpline multiple times and have always received amazing support, when I felt really lost with working and being ill. I have found speaking with the IBD community on social media has been helpful in getting first-hand advice from people who are going through similar things.


Hope, 20, living with Crohn's

It was also tough communicating about and explaining Crohn’s to people who had never heard of it before, when even I was new to it. I received a lot of support from Crohn’s & Colitis UK. 

I found reading people’s stories on the Crohn’s & Colitis UK website helpful - seeing that everyone has a different story, and that’s OK, we are all going through something challenging!

 

Speak up about your diagnosis experiences and add your voice to our early diagnosis campaign

Hope is sharing her story to show why early diagnosis matters

Why not share your story too? You could inspire someone to get checked and change their life today.

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Helpline service

Helpline
Service

We know it can be difficult to live with, or support someone living with these conditions. But you’re not alone. We provide up-to-date, evidence-based information and can support you to live well with Crohn’s or Colitis.

Our helpline team can help by:

  • Providing information about Crohn’s and Colitis.

  • Listening and talking through your situation.

  • Helping you to find support from others in the Crohn’s and Colitis community.

  • Providing details of other specialist organisations.

Please be aware we’re not medically or legally trained. We cannot provide detailed financial or benefits advice or specialist emotional support.

Please contact us via telephone, email or LiveChat - 9am to 5pm, Monday to Friday (except English bank holidays).

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If you need specific medical advice about your condition, your GP or IBD team will be best placed to help.

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