A trainee accountant from Peterborough, Louise became a Research Champion almost two years ago and works on the PROFILE Trial to drive personalised care in Crohn’s Disease.
I think research studies need people who understand the complexities of these conditions, and the good days and bad days we have. I know how to advocate for my healthcare and when sitting in on meetings I can translate everything into patient speak. I have good connections with consultants, which helps me to provide a vital bridge between medicine and patients, ensuring that they see hope and know that treatment is constantly improving.
I became a Research Champion because I want to highlight the great and important research being done in the field of IBD. After a decade of living with Crohn’s disease, my experiences of medications, surgeries, mental health and employment are aspect of research I want to raise awareness for.
Research is driving care, education and knowledge forward, and that is always a good thing.
Louise
Research Champion
Sitting on a trial like PROFILE helps me give a voice to all of those who live with Crohn’s or Colitis. It allows me to champion the work that clinicians do for our conditions, enabling us to better understand it so we can live fuller lives.
Volunteering is a great way to meet new people, develop new skills and make a difference to everyone affected by Crohn's and Colitis.
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We know it can be difficult to live with, or support someone living with these conditions. But you’re not alone. We provide up-to-date, evidence-based information and can support you to live well with Crohn’s or Colitis.
Our helpline team can help by:
Providing information about Crohn’s and Colitis.
Listening and talking through your situation.
Helping you to find support from others in the Crohn’s and Colitis community.
Signposting you to specialist organisations.
Please be aware we’re not medically or legally trained. We cannot provide detailed financial or benefits advice or specialist emotional support.
Please contact us via telephone, email or LiveChat - 9am to 5pm, Monday to Friday (except English bank holidays).
If you need specific medical advice about your condition, your GP or IBD team will be best placed to help.
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