We know that for many of you, fatigue is often the most disabling symptom. That’s why Sarah Green asked how it can be better represented in PIP assessments at Department for Work and Pensions questions. The minister agreed to a meeting and we will keep you posted.
Both Sarah and Hannah also made speeches in the Westminster Hall debate on Assessments for Disability Benefits, championing for the reforms needed to make PIP fit for purpose for people with Crohn’s and Colitis. They urged minister Tom Pursglove to:
- Scrap the 50% rule which overlooks the fluctuating nature of many long-term conditions, including Crohn’s and Colitis
- Refine the descriptors to reflect the very real and debilitating impact of Crohn’s and Colitis on people’s lives
- End the use of informal observations
- Ensure that the assessors receive high quality condition-specific training which has been coproduced with patient charities and clinicians, and quality assured by DWP.