Anwen - Research Champion

"I’ve become a Research Champion because I wanted to have a voice and as a Welsh speaker I can help to reach a wider audience."

A reflexology practitioner from North Wales, Anwen is representing people with Crohn’s and Colitis on the ADVANTAGE pain project, a new data hub studying chronic pain experienced by people with Crohn’s and Colitis, and other long-term conditions.

Crohn’s & Colitis UK has been a wonderful source of knowledge and understanding. I know I’m not alone, and the support and information I needed to work with a lifetime condition is so much appreciated. My combination of Colitis and IBS means I watch what I eat. My partner Ifan makes great gluten-free bread, while our two girls simply accept my condition as part of life. 

Research is the key to raising awareness of the conditions, and to providing more information and more accurate diagnoses. It can also reduce stigma.


Anwen
Research Champion

I live with varying pain, and I’m particularly interested in pain management research and the psychological aspects of managing pain. Now that I feel stronger, I can encourage others to face Crohn’s and Colitis positively. 

By being part of the ADVANTAGE pain project, I hope to raise awareness of this complex issue. Using my lived experience of pain from Colitis, I hope to be part of discussion with researchers and clinicians in moving this important research forward.

Want to volunteer with us?

Volunteering is a great way to meet new people, develop new skills and make a difference to everyone affected by Crohn's and Colitis.

Page
saved

This page has been saved in your personal space. Go to “My Page” to view all saved pages.

Helpline service

Helpline
Service

We know it can be difficult to live with, or support someone living with these conditions. But you’re not alone. We provide up-to-date, evidence-based information and can support you to live well with Crohn’s or Colitis.

Our helpline team can help by:

  • Providing information about Crohn’s and Colitis.

  • Listening and talking through your situation.

  • Helping you to find support from others in the Crohn’s and Colitis community.

  • Signposting you to specialist organisations.

Please be aware we’re not medically or legally trained. We cannot provide detailed financial or benefits advice or specialist emotional support.

Please contact us via telephone, email or LiveChat - 9am to 5pm, Monday to Friday (except English bank holidays).

If you need specific medical advice about your condition, your GP or IBD team will be best placed to help.

Would you like to save the changes made to this page?