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Campaigning for Better Diagnosis and Care in Northern Ireland

Published 13 October 2023
Northern Ireland Diagnosis patient care
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Northern Ireland Diagnosis patient care

On 4 September we met with Permanent Secretary Peter May as part of the Long Term Conditions Alliance Northern Ireland (LTCANI), to raise concerns about the disproportionate impact the Department of Health’s proposed budget cuts will have on those with long-term conditions.  

During the meeting we highlighted the expertise and innovation that our organisations bring to the health system and called for the Department of Health to:   

  • Recognise people living with long term conditions in policy and decision making.  
  • Recognise LTCANI as a partner to co-design solutions and system change as part of Department of Health’s transformation agenda.
  • Commit to no more cuts to the essential services provided by voluntary and community sector organisations.  

Whilst in Northern Ireland we met with The Alliance and Sinn Fein Health Spokespeople Paula Bradshaw and Linda Dillon to discuss the impact of delayed diagnosis and how they can make the case for change. We also discussed how the upcoming results of the IBD UK benchmarking surveys will be crucial in shaping IBD care in Northern Ireland next year.  

If you live in Northern Ireland and would like to share your experience of IBD care, please contact policy@crohnsandcolitis.org.uk.  

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We know it can be difficult to live with, or support someone living with these conditions. But you’re not alone. We provide up-to-date, evidence-based information and can support you to live well with Crohn’s or Colitis.

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