Campaigning for better care in Wales

Published 06 July 2023

Where you live should not impact how long you wait or the quality of care you receive – but there is still a huge variation in services for over 26,000 people in Wales with Crohn’s and Colitis 

Last month we responded to the Welsh Parliament’s Health and Social Care Committee’s inquiry, Supporting people with chronic conditions. This was an area the committee identified as a priority at the start of this parliament, giving us the opportunity to call for better care for Crohn’s and Colitis. The first stage of the inquiry focused on access to essential services and ongoing treatment, support for self-management, mental health, and the impact of the pandemic. 

Our response focused on the need to meet the IBD Standards, so that your care is proactive, preventative and personalised. Unfortunately, IBD care in Wales remains understaffed and under-resourced, with no service meeting the IBD Standards.  

We also reiterated the need for greater public awareness of Crohn’s and Colitis and awareness of symptoms, the importance of timely access to endoscopy, and how a diagnostic pathway can help to reduce waiting times and lead to earlier diagnoses. 

You can read our full consultation response here.

We need your help.

This is only the first stage of the inquiry, with further opportunities to respond expected later this year. By sharing your story you can help us to campaign for better services that benefit you. 

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Helpline service

Helpline
Service

We know it can be difficult to live with, or support someone living with these conditions. But you’re not alone. We provide up-to-date, evidence-based information and can support you to live well with Crohn’s or Colitis.

Our helpline team can help by:

  • Providing information about Crohn’s and Colitis.

  • Listening and talking through your situation.

  • Helping you to find support from others in the Crohn’s and Colitis community.

  • Providing details of other specialist organisations.

Please be aware we’re not medically or legally trained. We cannot provide detailed financial or benefits advice or specialist emotional support.

Please contact us via telephone, email or LiveChat - 9am to 5pm, Monday to Friday (except English bank holidays).

If you need specific medical advice about your condition, your GP or IBD team will be best placed to help.

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