Information for young people and families

Information for young people

Our new story Meet our Crohn's and Colitis cats is for children affected by Crohn's or Colitis, whether they have the condition themselves or know someone who does.

Transition to adult care is an important milestone for teenagers. It can help to find out more about what’s involved and how you can get ready for the change. We’ve written this booklet with the support of young people who’ve been where you are now (and their parents!). They shared their stories so we could give you tips to make transition easier.

The young people you’ll meet in this booklet all have Crohn’s or Colitis – and they want to share their stories with you.

Going to university or college can be an exciting but daunting time for anyone. If you have Crohn’s or Colitis you're likely to face additional challenges and have more concerns and questions. This guide sets out to answer some of those questions, and to give you some tips and suggestions based on professional advice and on the experiences of other students with the conditions.

Information for families

This booklet is for parents and covers a wide range of topics such as tests and treatments used for Crohn’s and Colitis in children, coping with school, going on holiday, and where to find financial and other types of help and support.

This information sheet discusses the challenges faced by people with Crohn’s and Colitis, and the valuable things family and friends can do to help them.

To tell or not to tell? And how? This sheet looks at why it may or may not be a good idea to talk to your child about your own Crohn's or Colitis, and suggests ways you can go about this.

If your child has Crohn's or Colitis, you may have extra expenses, such as higher heating bills, special diets, taxi fares, laundry, etc. Disability Living Allowance (DLA) can help to meet these costs. This guide will take you step-by-step through the process of making a claim for DLA, right from getting a copy of the form through to getting a letter telling you the result of your application.

Information for schools and universities

This includes basic information about Crohn's and Colitis and how teachers and other school staff can best provide the sort of support some children with Crohn's and Colitis may need. As a parent, you may find it helpful to make sure your child's school has this information.

This information sheet is intended to help staff better support students with Crohn's and Colitis at university and college. It suggests areas in which help may be most beneficial.