But this doesn’t mean you can’t still enjoy life. Many people with Inflammatory Bowel Disease (IBD) do well in their studies and are able to work and have successful careers. Read on for inspiration, information and support.
If I’m going to a foreign country before I set off I make sure I know the phrase for ‘Where is the toilet?’- I carry a Can’t Wait card in that language, too.
Get more tips for travellers in our Living with IBD videos below...
Crohn’s Disease and Ulcerative Colitis can mean that life presents some challenges. These may include:
- managing symptoms from diarrhoea to fatigue
- explaining your condition to friends, family and employers
- managing your food and diet
- detailed planning of travel arrangements
- keeping up exercise when you are feeling up to it
- claiming benefits or getting insurance
- coping with the emotional impact of having a long-term condition.
It is often the ongoing and unpredictable nature of the disease that can be especially difficult to live with. For example, you may suddenly have a worse flare-up than before, or start getting unpleasant side effects which are difficult to manage.
On the other hand, more positively, you may discover that a new drug works better or helps to keep you in remission much longer than usual.
We produce a range of publications to help you live with and manage your IBD. As part of our Information Standard accreditation, our rigorous review process means that we run all our publications past medical experts and readers (people with IBD). So you know that what you are reading is accurate, evidence-based, reliable, trustworthy and up-to-date.
Our three videos below are full of everyday tips from people with Crohn’s Disease and Ulcerative Colitis.
1. Coming with terms
2. Talking to other people
3. Staying well
The Living with IBD Videos were made possible due to the kind support of the Catherine McEwan Foundation. We would also like to thank the University of Hertfordshire for providing film locations
The content in these Living with IBD videos is based on two of our booklets:
Living with IBD – Edition 7a
Last review: May 2014 – amended July 2014
Next planned review: 2016
Understanding IBD: Ulcerative Colitis and Crohn’s Disease – Edition 5
Last review: June 2014
Next planned review: 2016
Our information sheets offer clear, detailed information on specific issues.
- Feelings when first diagnosed
- Helping others understand
- Practical tips
- Sources of help and support
- How symptoms vary
- How your flare-ups may impact you
- How to stay well more of the time
- Possible causes of fatigue
- Talking about the problem
- Ideas for tackling fatigue
- Why choose counselling
- What counselling can offer
- Finding a counsellor
- Can diet cause IBD?
- How you might be able to use diet to reduce symptoms
- Importance of healthy eating
- Vaccinations and taking medicines abroad
- Travelling after surgery
- How you may be able to avoid travellers' diarrhoea
- What to consider when looking for insurance if you have IBD
- Recommended insurance companies
- How smoking can affect people with Crohn’s and Ulcerative Colitis differently
- Guidance from medical professionals
We can help you with information about benefits you may be entitled to, and even with elements of your benefit applications.
Check out our Disability Benefits Service. We also produce a number of guides on different benefits which you might like to download here.