Researchers are looking for people living with Crohn's and Colitis who are comfortable using IT to fill in an online survey.
The IBD BOOST project are looking for information from IT literate patients with Inflammatory Bowel Disease (IBD) to see a new online self-management programme would be helpful.
BOOST is based on a cognitive behavioural model, where symptoms are caused by Crohn's and Colitis, and then maintained or worsened by thoughts, feelings and behaviours. The aim of the programme is to improve symptoms and quality of life by changing the way people think, feel and behave in relation to their symptoms.
This study, funded by the National Institute of Health Research (NIHR), will be looking to develop a brand-new self-management tool for those with pain, fatigue and urgency symptoms in Crohn's and Colitis. Right now, they are looking to find out:
- How many people with Inflammatory Bowel Disease (IBD, including Crohn’s disease and ulcerative colitis) experience fatigue, pain and urgency
- How many want help managing these symptoms
They will later be testing new ways of managing these symptoms (not part of this survey). More info on the survey can be found in this information sheet.
If you are interested in taking part in the testing and would like more information about taking part in the survey or using the symptom management tool, please get in touch with the IBD BOOST team.
Crohn's & Colitis UK are formal Research Partners in the IBD Boost project. However, we cannot take responsibility for your involvement in the research - it is a patient’s choice to take part.