Crohn’s & Colitis UK supports research which reflects patient views and priorities, and encourages and enables anyone who wants to take an active role in shaping research.
The role of the patient is no longer as a passive recipient of care. Whether you are a patient, carer, family member or healthcare professional, we aim to bring you together with researchers to ensure research is shaped and driven by those who need it most. This type of work is usually referred to as Patient and Public involvement (PPI) and describes the way in which researchers, patients and the public work together to develop studies which are both relevant and useful to patient and public needs.
Examples of ways you can help shape research include: working with research funders to help prioritise research, offering advice as members of project steering groups, participating in study focus groups, giving feedback to researchers on recruitment materials and highlighting practical issues that could stop people taking part in research.
To get involved in such opportunities, please see our listing below.
Help improve clinical trial design and data
Cochrane* have found that many clinical trials in Crohn's and Colitis aren't recruiting enough patients to produce high-quality data. This is often due...